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Lisa Lucier (@lisalucier)

Meet others living with autism: Come say hi

Autism (ASD) | Last Active: Dec 27, 2021 | Replies (149)

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Thank-you for forming this group. I have a 40-year-old daughter who was diagnosed with Autism at the age of three. At that time, Autism was not well known, nor well understood. Autism is hard to understand-our daughter showed signs of great intelligence and yet, she constantly shook her hands, walked awkwardly, and learned to talk by echoing phrases. To young parents, as we were at the time, it was confusing and quite frightening. There was very little written on the topic.

Thank goodness, we went to Riley’s Children’s Hospital; Indianapolis, where our 3-year-old daughter was diagnosed with a form of Autism. I remember my husband and I leaving in tears- hopeless and sad that our daughter would be facing a lifetime of ridicule, difficulties and limited success in life. Schools at this time would put Autistic children in classes for the emotionally disturbed, because there was such little understanding of autism at the time. Our child was put in classes with violent students, and it was scary for her. Schools were not prepared for autistic children and did very little at the time to develop the right programs. Fortunately, my husband and I had a large loving family who spent every waking moment loving and teaching my daughter- allowing her to experience and adapt to life by taking her everywhere with them and treating her like every other child. God bless my Dad-recently deceased- who spent hours with our daughter teaching her math and counting money; my mother (still alive) spent hours on reading and social skills. But most of all, we surrounded our daughter with acceptance, joy and happiness.

Fast forward…. 37 years, and I’d love to talk to young parents who’s children have been recently diagnosed. Thank goodness to early speech therapy, physical therapy, a loving and accepting family, and hours upon hours of teaching….. our daughter has thrived. She has grown into a beautiful young lady, speaks well, loves to read, is happy and kind, and has a good job. We couldn’t be more proud. She is the most loving daughter a parent could ever have and our entire family embraces her with a special love.

When I look back 37 years….. I vividly remember sobbing as my husband and I walked out of the hospital – hopeless. We realize today, that none of those fears were reflective of how our lives would ultimately turned out. I‘d like to share these experiences with young parents- that with the right (and early) interventions- your child can thrive and fit into society very well. But most importantly, show them consistent love and acceptance. Read to them- even when it appears they aren’t listening. Walk with them-even though they may walk awkwardly. Talk to them normally- even though their method of speaking may be different. Hug them-even if they seem to freeze up and not know how to respond. Because deep down….. autistic children need these things as much (if not more) than every other child. Today, we couldn’t imagine life without our unique and beautiful daughter. God blessed us with one-of-a-kind and we are thankful.

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Replies to "Thank-you for forming this group. I have a 40-year-old daughter who was diagnosed with Autism at..."

@cindyhanauer How fortunate to have had the experience you have had with your daughter! Your words are a teaching post for so many, and I am looking forward to input from others who have also raised up a child on the Spectrum. Your daughter sounds like a wonderful woman. Autism can take so many different forms and degrees.

Welcome to connect. I only wish that every child on the spectrum had the familial support you write about. Thankfully there is more understanding today, although I would argue that in many places and in many ways, some things remain the same. I love hearing about children and teens who are learning to navigate with an understanding of the differences. It is difficult enough for a child to find a path in the world, much less one who processes information in a completely different way. When you left the hospital sobbing, you envisioned a different life for your child, and without the understanding and tolerance of her differences her life may very well have been what you feared. Good for you, good for her, and thank you for sharing your story.

I have son with same condition, hes now 18, 15yrs ago when he was 3 i take him to the doctor for hematology purposes but suddenly dr said he have autism behaviour, she advice me to take him to the nuerology, but i dont ha much time spending with him coz im a working mom,i left him with the care of his father,after yrs n yrs he not developed his brain ability to study, at his aged hes brain ability to study is very low😥i dont have time to help him, his now 18 feel the aged of teenager but he never developed his speech, not all the word he said can understand,sadly his father left us and now he's very hardworking teen ,he find a good waY to have own money for himself, getting job .im happy about that of course but still im worrying for his future when im no longer around him,
Im still hoping he can have his own family someday so he ha e own family to take caRe of him