← Return to Anyone diagnosed with Primary Central Nervous System (CNS) Lymphoma?

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@mepowers

Ann, I don’t know if it’s appropriate to hand out your number to someone on this forum or not. This was my exact diagnosis with added I formation...Large B cell CNS Lymphoma, I lost motor skills and cognitive skills. Immediately after my brain biopsy, I couldn’t even hold a sandwich or use utensils. I would love to hear your story and share mine. I will tell you that mine has a happy ending. Two more clean MRIs, and I’ll be considered cured. If his treatment is the same as mine, he’s got a tough year ahead of him. If you would like to talk,I’m very open to it. Let me know, and I can give you my contact information. It’s really an overwhelming time.

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Replies to "Ann, I don’t know if it’s appropriate to hand out your number to someone on this..."

Hey glad to here about your recovery
My mother is currently suffering from this disease and she has been unconscious because of it for more than one month now with occasional response so I would also want to talk to you if possible. I would love to know the entire story and the treatment you had