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Anyone diagnosed with Primary Central Nervous System (CNS) Lymphoma?
Blood Cancers & Disorders | Last Active: Nov 12, 2023 | Replies (72)Comment receiving replies
My husband Dave has been diagnosed w/ CNS Lymphoma. He went by ambulance to a hospital where a CAT SCAN indicated a brain tumor and then was transferred to a larger hospital where he had an MRI and craniotomy (to take a sample of cancer in his brain). The Pathology report confirmed the diagnosis of CNS Lymphoma. He began chemo in hospital this afternoon (Feb. 26, 2021). His brain cancer is in the left frontal lobe and his executive functions have been completely compromised since I called an ambulance for him the morning of Feb. 8, 2021.
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Ann, I don’t know if it’s appropriate to hand out your number to someone on this forum or not. This was my exact diagnosis with added I formation...Large B cell CNS Lymphoma, I lost motor skills and cognitive skills. Immediately after my brain biopsy, I couldn’t even hold a sandwich or use utensils. I would love to hear your story and share mine. I will tell you that mine has a happy ending. Two more clean MRIs, and I’ll be considered cured. If his treatment is the same as mine, he’s got a tough year ahead of him. If you would like to talk,I’m very open to it. Let me know, and I can give you my contact information. It’s really an overwhelming time.