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clavallee2 (@clavallee2)

Primary Central nervous system lymphoma

Brain Tumor | Last Active: Feb 27 10:34am | Replies (10)

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@wldflowur13

I’m sorry for the delay in responding @clavallee2 My aunt has this- she was diagnosed in September of 2018 and she actually just finished her final round of chemo this month. She’ll have an MRI on Wednesday to check the brain tumor, but the last scan showed that it seemed to be gone (or as the specialists said, it’s no longer measurable). She went through 19 rounds of high dose Methotrexate and Rutiximab. As @mepowers mentioned this treatment had to be administered as an inpatient in the hospital. For my aunt it usually required at minimum a 6 day stay and sometimes up to 2 weeks. It just depends on how long your body takes to clear out the Methotrexate chemicals. They keep you until the chemicals get to a low enough level that it’s safe to leave. My aunt’s brain tumor was right on her brain stem so surgery wasn’t an option. It’s been a tough journey for us and we’re still trying to figure out how to live with this new normal. My aunt has a lot of brain impairments caused by the tumor, but hasn’t accepted them and it’s been a bit of a nightmare. But we’re grateful she’s doing so well. If you have any questions- I’d be happy to share our experiences.

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Replies to "I’m sorry for the delay in responding @clavallee2 My aunt has this- she was diagnosed in..."

Wow, @wldflowur13 – seeing your aunt's brain tumor shrink to the point of no longer being measurable is great.

Did your aunt have any side effects from the 19 rounds of high-dose methotrexate and rituximab?