Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

the more i read about pmr and the more i have my own experiences i have come to the conclusion this is a tricky disease..i was doing well on taper from 20 to 7.5 when i relapsed and had to return 20 which was inadequate..now on 25mg for4 days with relief of pain and increased mobility of hip joints..however i too suffer greatly from severe fatigue which my rheumatologist says is not characteristic of pmr --i totally disagree but dont won't to come off as an arrogant dr/patient

Yes, I did have trouble sleeping and was prescribed amytripline for as long=
as I was taking the prednisone. I also had weight gain. I am not physica=
lly active, but some of the weight came off when decreasing the dose. But =
my main goal was to lessen the pain.

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the more i read about pmr and the more i have my own experiences i have come to the conclusion this is a tricky disease..i was doing well on taper from 20 to 7.5 when i relapsed and had to return 20 which was inadequate..now on 25mg for4 days with relief of pain and increased mobility of hip joints..however i too suffer greatly from severe fatigue which my rheumatologist says is not characteristic of pmr --i totally disagree but dont won't to come off as an arrogant dr/patient

@munchie and bunkysmum78. I don't have PMR but have Giant Cell Arteritis. I was on Prednisone for 1 1/2 years and suffered severe fatigue. No more fatigue after stopping Prednisone! Maybe your Prednisone is a contributing factor, as mine was.

i am a retired gastroenterologist age 74. 6months ago i awakened with severe R hip pain and decreased mobility in both hip joints..spoke to my internist and because of the politics of medicine today i was referred to a sports medicine specialist..routine x rays were done and he claimed i had osteoarthritis[which i do, albeit very minimal] and suggested steroid injection under ultrasound guidance despite me claiming that osteo does not come on so suddenly..after 2 weeks and no response he sent me to an orthopedist who repeated plain films of hips and said i need a hip replacement but because of the steroid injection it would be put on hold for 2-3 months..with me having increasing and sever pain he ordered sed rate and crp which were quite elevated..his focus now was that i had an abscess in the hip and sent me back to sports medicine for aspiration of joint--which btw was neg..so i did what i swore i would not do and that is treat myself, got an mri and took a dose pack with overnight relief..mri confirmed i did not need a hip replacement and i then put myself in the hands of a rheumatologist who in less than a minute confirmed the dx of pmr ..have had ups and downs in that every time i get below 20 mg of prednisone the symptoms increase..and when the joint mobility and pain decreases i am left with sever fatigue and subjective muscle weakness..trying to be a patient patient...all thoughts would be appreciated

I have also been having a tough time with PMR this season and am also on Methotrexate (besides Prednisone). Maybe @123suew needs a secondary medication?

since going this support group 24 hrs ago i am so invigorated to find so many with so much in common..i find your shared thoughts so very helpful..my son who is a transplant cardiologist agrees that laymen often know more than the doctors and listening is often the key to finding solutions..again i thank you all

Did you have any bad side effects from the Methotrexate? Are you taking that plus prednisone? Thanks 123SueW