Anyone used Spinal Cord Stimulation for pudendal nerve entrapment?

Posted by rstollery @rstollery, Dec 12, 2019

I saw a health program on our local TV station last night about a Connecticut man who had good success in treating chronic pain with a StimwaveFreedom Spinal Cord Stimulation System. Has anyone tried this for Pudental Nerve Entgrapment? I understand it's quite exensive, but after nearly 40 years of chronic pain I am open to anything.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

vklittle61 | @vklittle61 | Dec 12, 2019

You’ve had pudendal nerve entrapment pain that long? God that’s awful! I have it also! What treatments have u done ?

rstollery | @rstollery | Dec 14, 2019

In reply to @vklittle61 "You’ve had pudendal nerve entrapment pain that long? God that’s awful! I have it also! What..." + (show)

Yes, it started in 1981 after I fell off a ladder. I tried hypnotherapy, acupuncture, visiting a chronic pain specialist and have used hydrocodone for the past 15 years or so to ease the pain slightly and let me sleep on my side. I also pray daily.

vklittle61 | @vklittle61 | Dec 14, 2019

That’s awful

scruffy1 | @scruffy1 | Dec 14, 2019

In reply to @rstollery "Yes, it started in 1981 after I fell off a ladder. I tried hypnotherapy, acupuncture, visiting..." + (show)

If you go back through the pages you'll find several people using SCS.

Kanaaz Pereira, Connect Moderator | @kanaazpereira | Dec 14, 2019

Hi @rstollery,

I’m tagging a few members – @donw200 @scruffy1 @barbbie @user_chf56161a @seanivor – who are talking about a variety of spinal cord stimulators in these discussions on Connect:
– Stimwave user here https://connect.mayoclinic.org/discussion/stimwave-user-here/
– Spinal Cord Stimulation https://connect.mayoclinic.org/discussion/spinal-cord-stimulation-2/
– Spinal Cord Stimulation https://connect.mayoclinic.org/discussion/spinal-cord-stimulation-3/

rstollery | @rstollery | Dec 14, 2019

Thanks. I've looked at them but didn't find anything all that positive yet.

barbbie | @barbbie | Dec 14, 2019

I have had my Boston Scientific stimulator since 2012. That was replaced in 2018 with a newer model. I find it very helpful for my neuropathy in my legs and CRPS in both feet as well as lumbar pain due to a variety of problems. I now use it 24 hours a day with night time use being on silent or close to it. I am allergic to many meds that might help, but I find this much more acceptable. Have any questions I might be able to answer, I'd be glad to. I also have pudendal nerve damage from the first child birth experience 45 years ago next Tuesday!- I don't have pain, just loss of functions.

patrick17 | @patrick17 | Dec 14, 2019

I have recently been reading about Stimwave and watching their videos of success stories. I like the idea of not having a battery implanted. I have been considering a spinal cord stimulator for over a year for my hand and arm pain, but based on what I’ve read I’m not convinced it will be successful. I know they do a trial, but I have read accounts where the trial works well, but the implant doesn’t. There are groups on Facebook where people can get information about spinal cord stimulators. They have been very helpful to me in making a decision. Unfortunately, I have not read about anyone using the Stimwave. It’s not as well known. Good luck to you.

scruffy1 | @scruffy1 | Dec 15, 2019

I have had great success regarding lower back pain from my high-frequency SCS. It's been more than 2 years that I can sit in the morning without pain. It has NOT helped with my neuropathy. I know it's working because when I forget to charge it, my back starts hurting. It's charging this morning as I type this, pain-free.