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I have tried a couple of sites in the past few years in the hope of finding other people with similar medical problems like mine. It turns out that there are very few who are even close. I can live with that. What I hear from everyone though is that they are suffering from pain and there are no real solutions coming from the people who are suppose to be qualified to help. Doctors, research institutions. This is insanity at it’s finest. To top this off is the very thing that tops this off is the stress this causes. This morning and yesterday, I noticed that the replies that I am getting are going to my spam file so I am assuming that my replies to the people who were trying to be helpful that was happening to. Since I most of my spam file I just delete because it has nothing but crap on it. My replies are not crap to me! So I see I am wasting my time again. Very disappointing but I have experienced this before. Blaming Verizon’s bullshit is also crap. I retired a few years ago from that other telephone company. They were always bullshit artists. The organizers of this site are to blame in my opinion. Anyone who has ever had to deal with a major corporation and that includes medical institutions, when it come to people with problems, the don’t give a dam. As a matter of fact they go out of their way to make things worse for people. I have had enough of this an I am leaving this site. My time left in this world is too important to me.
Replies to "I have tried a couple of sites in the past few years in the hope of..."
Hi @goldleaf, I can see that you are upset. Your replies and the posts made by fellow members are of high quality, demonstrating caring members who are knowledgeable and supportive, and who wish to make meaningful connections to help improve health and well-being.
Email companies are continually tightening their security in order to help filter out unwanted spam and to protect their clients. However, as security increases, sometimes emails that you've subscribed to receive get caught in the spam filter. As the Mayo Clinic Connect community grows and activity increase, we discovered that more and more members are experiencing that their email notifications are being sent to their spam folder. In this blog post, we explain how you can add Mayo Clinic Connect to your safe sender list and continue to receive the emails notifications you want.
How to add Connect to your Safe Senders List https://connect.mayoclinic.org/page/about-connect/newsfeed-post/what-to-do-if-you-arent-getting-connect-email-notifications-anymore/
I hope this helps. If you have any questions or concerns about how Mayo Clinic Connect is managed, please write to me using this form: https://connect.mayoclinic.org/contact-a-community-moderator/
Colleen
Connect
@goldleaf, no offense but spam is a major problem for all Internet service providers. I have worked in the giant tech corp world and I've also worked the last 20 years in a local telco as their Internet helpdesk and computer repair person. You are correct just because some emails go to the spam folder or are blocked from even reaching your inbox doesn't mean the email is spam to the user. Real spam is a major source of virus and phishing emails used for identity theft and the reason why Internet service providers have been beefing up their email spam appliance even though us techies don't like. The organizers of this site do their best but due to the way mail servers work it's an impossible task without help from each user. The purpose of Connect is to help members share their health experiences, ask questions and learn what others are doing to help with their symptoms.
Hopefully we can help each other when the tech problems arise for members without blaming the site or others. As far as the Verizon BS, the truth is what it is.... https://www.verizon.com/support/residential/email