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My Cochlear Implant - a journal

Hearing Loss | Last Active: Jul 22, 2023 | Replies (159)

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@lizzy102

March! Gosh, It’s been 6 weeks since my processors were activated. It would take hundreds of words to describe how much my life has changed. Things I could never do before - talk with my friends on the phone, talk with my grandkids on FaceTime - I now enjoy. A pine warbler was outside the RV window and the sound was so interesting, detailed and rich.
I am an immunosuppressed kidney transplant recipient - 20 years out - and this Covid-19 has me scared. I’m self-isolating to prevent exposure. I wasn’t able to do a huge shopping trip because the number of people in grocery stores. I normally shop at odd hours to avoid the crowds. Barb shops and we use bleach to clean packages coming in to the RV. Oh, yes. We finished renovating our house and it gets listed today. Our goal before the virus was to sell the house and move closer to our grandchildren. Now, we’re trying to decide what to do at all. Sticking in this lovely state park seems a good bet at least until the house sells. So not only have I been learning how to hear again, but the rest of my life is topsy-turvy.
The cochlear implant surgery didn’t go as well as it could have, I’m still experiencing taste bud issues. A persistent metallic taste throughout my mouth and reactivity to salt and sugar that blow both flavors up to an intolerable level leave me not so hungry.
Aural rehabilitation has been a blast. I use Angel Sounds, listen to audiobooks, talk on the phone, and was talking to anyone who would stop a minute when I was out - not now with the virus, I’m home.
With hope you are all social distancing etc. I read a good thing, “Don’t do social distancing because you could get the virus. Practice social distancing as you HAVE the virus and protect others in your community.”

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Replies to "March! Gosh, It’s been 6 weeks since my processors were activated. It would take hundreds of..."

Hi @lizzy102, I didn't realize that you are a transplant recipient. You may be interested in the Transplants group on Connect here https://connect.mayoclinic.org/group/transplants/

In this discussion, members are talking about the virus and how to stay safe:
- COVID-19 and Transplant Patients https://connect.mayoclinic.org/discussion/covid-19-in-transplant-patients/

In fact, we created an entire group dedicated to COVID-19 to help people cope, find connection during social isolation and get answers to questions that seem to be changing by the minute.
- COVID-19 Support Group https://connect.mayoclinic.org/group/covid-19/

Lizzy, it sounds like aural rehab is going well. I'm curious about the taste bud issues. Can you explain the relationship between the Cochlear implant and taste? Anyone?

Hi Lizzy, it's great all that you have accomplished with your CI! But sorry about those taste bud issues - which I have never heard of. Do you have an detailed explanation from the doctor for why these problems?