← Return to Not diabetic with Chronic Pain with Idiopathic SFN, tried everything

Discussion
Comment receiving replies
@nadoush

Dearest @2013pain sweetie feeling frustrated is normal as living with pain can drain you but trust me you don’t want to give up on yourself. I can only say I relate to you and I know how it feels when the pain doesn’t seem to go away and just the touch of your feet on the floor is pure agony! I often wondered about my doctors if they had any clue about what they’re doing? I can only share with you my journey and hope you’ll feel there’s someone you can turn to just to complain and let it all out as most of the time we just feel like screaming and we just need someone to listen without them trying to say it’s ok, it will get better! I’m a single mom and I’m thankful that I’ve managed to see my son through college the best that I can giving him all the love and support but I learned that I should’ve shared with him my restrictions instead of pressuring myself to be the perfect mother. For in these situations sharing with your loved ones helps all to deal with things and will make you less stressful. Stress is a major trigger of pain and as long as we have high or unrealistic expectations of ourselves our stress level will increase and this our pain will worsen. I haven’t been able to work for the last two years and just recently I accepted this fact and that helped in decreasing my stress. Don’t misunderstand me, I’m not giving up! I’m learning how to reinvent myself to make the best of my situation and in that hoping that I can create a lifestyle that will provide me with personal satisfaction and a fresh look at life. The first and most important step is acceptance and creating a new lifestyle that can fulfill you and trust me your family will support you for they’d rather have 1 hour of you being happy than many with you frustrated. I’ll be more than happy to be here for you and together to work on creating a new beginning of a wonderful new journey despite the pain. I hope this might be of help to you and please know I’m always here for you.sending you loads of love and healing hugs.

Jump to this post


Replies to "Dearest @2013pain sweetie feeling frustrated is normal as living with pain can drain you but trust..."

@nadoush, what a salient and supportive response. Thanks for mentioning the strategy of revealing and sharing your restrictions with loved ones. They do want to be supportive. It is difficult for them to see your pain and discomfort and not be able to “fix” you.

Sometimes just inviting them to watch a series on Netflix with you that you both enjoy becomes quality time. Other times it is sharing memories, a “Remember when” moment or two.

Maybe a bird feeder project and a journal of all the birds that visit. Learning together about migration and mating can be a project that you can enjoy together. Just some ideas. Chris