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Osteopetrosis (dense bones): Anyone know about this?

Posted by Ryman @ryman, Dec 5, 2019

I saw my doctor Tues and my summary sheet listed a problem I had never see or heard of before- - osteopetrosis. I have had osteoporosis for years. Apparently in osteopetrosis the bones are very dense but fracture easily. I sent a message to my doctor but haven’t received an answer yet. Anyone have this or know about it? Thanks.

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imallears | @imallears | Dec 6, 2019

@ryman
Hi
Sorry to hear about this. I saw a tv documentary last year about osteopetrosis or hard bones and Pagets disease (something different) but it was all about it being in children due to an inherited gene. I didn’t know it could occur in adults. Was it diagnosed after a dexascan and do you have any symptoms? Please let us know what the doctor says. I would consider another scan at the same facility and ask if there are any other determining tests like a blood test.
I would like to know what can be done besides the usual drug and lifestyle treatments for osteoporosis.

FL Mary

REPLY
1 reply
Ryman | @ryman | Dec 7, 2019
In reply to @imallears "@ryman Hi Sorry to hear about this. I saw a tv documentary last year about osteopetrosis..." + (show)
@imallears

@ryman
Hi
Sorry to hear about this. I saw a tv documentary last year about osteopetrosis or hard bones and Pagets disease (something different) but it was all about it being in children due to an inherited gene. I didn’t know it could occur in adults. Was it diagnosed after a dexascan and do you have any symptoms? Please let us know what the doctor says. I would consider another scan at the same facility and ask if there are any other determining tests like a blood test.
I would like to know what can be done besides the usual drug and lifestyle treatments for osteoporosis.

FL Mary

Jump to this post

Well, my doctor told me this was entered by mistake. Yeah! But it does happen to adults. It seems to be a gene thing. One of sisters was once told she had Pagets but I don’t think she did. I know my osteoporosis is very bad. I can’t take the usual meds so I am only taking calcium and Vitamin D.

REPLY
2 replies
imallears | @imallears | Dec 7, 2019
In reply to @ryman "Well, my doctor told me this was entered by mistake. Yeah! But it does happen to..." + (show)
@ryman

Well, my doctor told me this was entered by mistake. Yeah! But it does happen to adults. It seems to be a gene thing. One of sisters was once told she had Pagets but I don’t think she did. I know my osteoporosis is very bad. I can’t take the usual meds so I am only taking calcium and Vitamin D.

Jump to this post

@ryman
That's a heck of a mistake and unnecessary worry. But I'm glad to hear it doesn't apply to you and didn't know it could occur in adults. Thanks for letting us know. Stay healthy and happy.
FL Mary

REPLY
1 reply
Ryman | @ryman | Dec 10, 2019
In reply to @imallears "@ryman That's a heck of a mistake and unnecessary worry. But I'm glad to hear it..." + (show)
@imallears

@ryman
That's a heck of a mistake and unnecessary worry. But I'm glad to hear it doesn't apply to you and didn't know it could occur in adults. Thanks for letting us know. Stay healthy and happy.
FL Mary

Jump to this post

Thank you. The same to you.

REPLY
asegura | @asegura | Dec 11, 2019
In reply to @ryman "Well, my doctor told me this was entered by mistake. Yeah! But it does happen to..." + (show)
@ryman

Well, my doctor told me this was entered by mistake. Yeah! But it does happen to adults. It seems to be a gene thing. One of sisters was once told she had Pagets but I don’t think she did. I know my osteoporosis is very bad. I can’t take the usual meds so I am only taking calcium and Vitamin D.

Jump to this post

Make sure your calcium has vitamin D3, magnesium and Vitamin K2. I take Alive Calcium which seems to have all the necessary ingredients. I’ll be interested in learning about other products that are formulated to keep our bones strong as we age.

REPLY
lioness | @lioness | Dec 11, 2019

@asegura I had a Dr,s appt yesterday and asked her any more medicine for osteoporosis and she said Glucosimine is good for the cartalige and will help build bone so I'm adding this to my already calcium, mag,Vit D3,Vit K Boron . Check it out for yourself Research is the key to education.

REPLY
1 reply
asegura | @asegura | Dec 21, 2019
In reply to @lioness "@asegura I had a Dr,s appt yesterday and asked her any more medicine for osteoporosis and..." + (show)
@lioness

@asegura I had a Dr,s appt yesterday and asked her any more medicine for osteoporosis and she said Glucosimine is good for the cartalige and will help build bone so I'm adding this to my already calcium, mag,Vit D3,Vit K Boron . Check it out for yourself Research is the key to education.

Jump to this post

Thank you. I’ll add it too.

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