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Pancreatic Cancer Group: Introduce yourself and connect with others
Pancreatic Cancer | Last Active: 8 hours ago | Replies (1371)Comment receiving replies
Hello, I was diagnosed with pancreatic cancer in April 2019, had whipple surgery in May 2019. In the report they are calling this Ampullary cancer but still took 1/2 of my pancreas along with parts of what goes along with this type of surgery. I have had a terrible reaction to Creon, switched to over the counter Papaya Enzymes. They also became a problem so now fighting this with foods that build digestive enzymes but still having issues with stool problems. I feel very lucky compared to marvinjsturing, hang in there Marvin. Does anyone have any suggesting on how to handle my issue?
Replies to "Hello, I was diagnosed with pancreatic cancer in April 2019, had whipple surgery in May 2019...."
Hello @treadmillann My wife has also had terrible reaction to the Creon, severe stomach pain and diarrhea. To make matters worse, the recommendation from the surgical staff was always the same, increase the Creon dosage. She lost over 20% of her body weight before we just decided to stop the Creon. She has improved marginally by using Imodium with the docs approval but still has intermittent diarrhea. At least the weight loss seems to have bottomed out for now. OTC papaya enzymes is the first possible alternative I've heard and will try them. How did you learn about digestive enzymes building food? I need to do more research.
How are you doing now? What is working for you?
PS my wife thinks that she can't take the Creon because it is a porcine derivative and she might be allergic since she's never eaten pork products.
I was on a clinical trial that caused some intestinal issues and Creon was not really helping. I use Galvescon which does help immediate issues. A friend did research with drugs for Melanoma and they found that increasing glycine in the diet helped with treatment and inflammatory issues. I now make my own bone broth and drink every day and use in cooking. It seems to help me and besides it is soothing. You can also buy bone broth, chicken or beef.
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Welcome @treadmillann. Have you seen this video by a Mayo Clinic physician?
- Cancer-Fighting Foods https://connect.mayoclinic.org/webinar/cancer-fighting-foods/
@marvinjsturing also started this discussion about enzyme replacement that you may wish to add to:
- Pancreatic enzyme replacement https://connect.mayoclinic.org/discussion/pancreatic-enzyme-replacement/
What foods are helping you? What are you doing about the bowel/stool issues?