@cindylb, welcome to Mayo Clinic Connect. This is a gathering place of individuals who are trying their best to be good consumers of their own health care. These days, we really have to do our homework. Doctors are so busy, nurses, too, and often, there is miscommunication. So it is helpful to have a place to come where we can ask questions and get things sorted out in between medical appointments .
I am not a medical practitioner in any sense of the word. But our Director, @Colleen Young mentioned to me that you were going through a really tough time with Cellutis. She knows all about what both my daughter and my husband have been through with Cellulitis. Both are doing quite well, now. I am a Volunteer Mentor here at Mayo Clinic Connect. Mostly I hang out over at the Autism site, or at the Depression sites. Gratitude and Chronic Illness . All are valuable to me.
You did not mention Diabetes in your story. My husband and daughter both are Diabetic, and take strong precautions whenever they get a scratch or a cut. Their ability to heal is compromised by the excess sugar in their blood. My daughter has a difficult time keeping her blood sugar under control. So does my husband. I am Type Two Diabetic, and I am on a strict low carb diet. Yet, I still do not heal as quickly or as well.
My daughter has Lymphedema, primarily in both legs. Her recent bout with Cellulitis landed her in the hospital for a week, hooked up to IV antibiotics. Antibiotics in pill form had ceased to be effective. Her leg looked like it was about to be Gangrenous. Thank God her PCP sent her to the ER with orders to be admitted. She is doing just fine now.
My husband had cellulitis in both legs, several Thanksgivings ago. He had to have surgery to take care of it. The tiniest scratch or mark can send him into a severe case of infection. While you do not have Diabetes, the fact that you have Lymphedema puts you at a somewhat greater risk of infection. So you will need to be proactive in your routine of self care. Cold weather can cause some folks to have cracked skin. Chapstick, body and hand lotions will help to keep skin smooth and clear. If you have even the tiniest scratch, always make sure you keep it clean and covered with antibiotic ointment. Wear gloves to protect your hands from the elements.
Needless to say, if you suspect an area of skin is not healing as it should, do not hesitate to call your PCP. You may avoid another hospitalization if your wound is caught in time.
I am so sorry you have had to go through with this serious condition and all it entails. But you are not alone. Many other folks have this and although it is not easy, there is strength in numbers. We are here for you, and happy to lend an ear, any time. As we say often over at the Autism site, "We are better together."
Please let us know how you are getting along. We can learn from one another, and help each other.
Mamacita
@mamacita Thank you so much for your reply. Once I was home and able to try and find more information on Cellulitis and Sepsis it was hard to find anything but the most basic information (and I need to understand my challenges to remain calm and focused). That is when I reached out to Colleen and she found you for me! I am a breast cancer survivor (four years) and developed mild lymphedema that I have been able to control easily, but it has created extra challenges for me with the cellulitis. I have been careful but something obviously slipped past me and I found myself with this horrible infection. It's very scary and so I feel for both your daughter and husband. I will be even more diligent now.
My extra challenge has been my allergy to almost all antibiotics. I was hospitalized and they found antibiotics that I could tolerate or where they could manage the side effects. I have been less successful while out of the hospital and have had to go to the ER for treatment twice due to allergy to the oral antibiotics. I will be going to the allergist again to see what my plan will be moving forward.
Although my sepsis was said to be 'mild' it was the most painful and debilitating thing I have ever felt. I developed problems with my heart, kidneys, platlettes and blood sugar while in the hospital. Of course my inflammation and infection markers were off the charts but it's all resolved now with the exception of my hand and arm swelling and a small abcess in my hand that was addressed yesterday with ortho and will be followed.
I am just now well enough and pulling my life back together to respond to your post BUT I read it right away and it gave me support and comfort and I thank you so much. I would like to stay in contact and learn from your experience and I welcome all of your suggestions.
Thank you for being there.
Cindy B.