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Jak 2 and Waldenstrom's Macroglobulinemia
Hi to all on this group. I was diagnosed with jak 2 and mgus in 2016 and then Waldromstrom Macroglobulinemia(WM) in august 2019. The hematology/oncology doc didn't test for the WM until 2109. I have many symptoms of both cancers and have had for many years. I am trying to get care via the mayo clinic; however, the scottsdale mayo clinic (15 miles away) doesn't take medicaid and the rochester clinic only takes patients with Medicaid who reside in States that border Minnesota.
Dilemma:
Given the fact that I have two different categories of blood cancers, would the Mayo Clinic in Minnesota make exceptions to their policy so I can be seen by the experts under my az medicaid?
I have the ability to be in rochester for all appointments. My son lives in minn.
Thank you for any help anyone can offer.
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Hi @svend, I see you are inquiring about Waldenstrom's and treatment. You will notice that I moved your inquiry to a discussion about that subject and members who have experience with it.
You may also find useful information on Mayoclinic.org here: Waldenstrom macroglobulinemia - Diagnosis and treatment: https://www.mayoclinic.org/diseases-conditions/waldenstrom-macroglobulinemia/diagnosis-treatment/drc-20359986
@svend, have you been diagnosed with this or are you just inquiring?
Been diagnosed three years ago and now recurring. Serious neuropathy from first round and worried about it getting worse. Not sure if it’s from disease or treatment
@svend, neuropathy can be caused by disease or treatment or both. Your team will watch the neuropathy closely. Be sure to let the know how it is affecting you. Do you have diabetes or pre-diabetes by any chance? What chemo are you getting?