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Jak 2 and Waldenstrom's Macroglobulinemia

Blood Cancers & Disorders | Last Active: Mar 10, 2021 | Replies (23)
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@JustinMcClanahan

Hello @janemichele. Here is some additional information:

From a Mayo Clinic Hematologist,

"A provider could apply the same staging system (Ann Arbor Staging for lymphoma) to WM, which goes from 1 to 4 (like the TNM staging system for solid cancers that also goes from 1-4). However, in particular for WM, the Ann Arbor staging system is not helpful as all WM patients would be classified as stage 4, therefore, not giving us any information regarding prognosis. More commonly used is the IPSS-WM (international prognostic scoring system for WM) score, which is designed for WM and actually carries some meaningful prognostic information."

Here is a link to the original IPSS-WM publication: https://www.ncbi.nlm.nih.gov/pubmed/19196866.

@janemichele, were any of these tests discussed with you?

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Replies to "Hello @janemichele. Here is some additional information: From a Mayo Clinic Hematologist, "A provider could apply..."
janemichele | @janemichele | Jan 11, 2020

Hi Justin. Thank you so much! And thanks to the hematologist/oncologist for the information.
This was very helpful for me. I sent it to my hematologist. No. she hasn't discussed any of this with me. When I asked via medical portal, she said there isn't any staging because it's in the blood. I have also asked for clarification as to the number of cancers I have but I haven't heard from her. ( MPN, ET, JAK2, WM, NHL).
Again, thank you for your help.

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