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Jak 2 and Waldenstrom's Macroglobulinemia

Blood Cancers & Disorders | Last Active: Mar 10, 2021 | Replies (23)
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@janemichele

Thank you. It sounds like you are doing very well. So far, I'm just on hydroxyurea 1000/day, oral chemo.
I think my bottom line question to myself and to those who are knowledgeable and /or experienced, should I request a different doc? I'm thinking, yes.

If anyone else has suggestions or answers on staging, I'm interested.

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Replies to "Thank you. It sounds like you are doing very well. So far, I'm just on hydroxyurea..."
ginette55 | @ginette55 | Jan 1, 2020

I will say yes. My first oncologist told me you are in stage 4, even the chemo cannot help you. Go and live your life. My daughters ask for the head of oncology in the hospital for a second opinion. I happened to know about this treatment in Germany. By chance they had the product and never use it because not recognized by the FDA. I assumed the responsibility and sign all the papers. Good luck.

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