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Jak 2 and Waldenstrom's Macroglobulinemia

Blood Cancers & Disorders | Last Active: Mar 10, 2021 | Replies (23)

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@janemichele

Hi Justin. Unfortunately, there are few responses regarding my questions about JAK2, Essential Thrombocythemia and Waldromstrom's Macroglobulinemia , most likely because few people have these cancers.

I appreciate all the info available on research studies; however, can you refer me to someone I can consult with directly regarding treatment, survival rates, and staging, given I have two or three rare cancers? I can't even figure out if I have two or three types of cancer. Does anyone on this on this group have an answer? My new doc hasn't provided many answers.

FYI, I just started back on chemo hydroxyurea for jak2 and ET, I don't know the effect of this chemo drug on waldromstrom's. Anyone know?

Thank you.

Regarding becoming a patient of mayo clinic, I am out of luck since I have medicaid.

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Replies to "Hi Justin. Unfortunately, there are few responses regarding my questions about JAK2, Essential Thrombocythemia and Waldromstrom's..."

Hi justin. Are there any words of wisdom from your net worth of doctors but from your experience and knowledge?