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HCM specialist?

Hypertrophic Cardiomyopathy (HCM) | Last Active: May 24, 2023 | Replies (24)

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@rondar

I am concerned how my diagnosis may affect my kids and grandchildren. I want to ask about genetic testing for them.
My valvular Cardiologist did not tell me I have HCM until I asked. I had an aortic valve replacement and a myectomy. When I was researching myectomy I found this is was for patients with HOCM. So I asked him if I had this and he said yes. We have never addressed the subject again.

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Replies to "I am concerned how my diagnosis may affect my kids and grandchildren. I want to ask..."

Rondar I am truly sorry that your doctor was not upfront with you. My husband was diagnosed with mitral valve problems at the age of 43, 41 years who) but a year later the diagnosis changed to HCM. October 4 2018 he had septal myectomy at Mayo Rochester after being severely compromised to the point of fainting. He is as normal as normal can be Doing amazingly well still has HCM but it’s no longer obstructive. he takes 50 mgms a day of atenolol We talked to the cardiologist about genetic testing for our son to which the cardiologist recommended having an echo every 5 years so his first echo was normal he will be monitored for the rest of his life.
I hope this helps. Keeping as fit as you can with diet and exercise really helps recovery after surgery if that’s what you need. Best wishes to you and Happy Thanksgiving 🦃