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Neuroendocrine Tumors (NETs) | Last Active: Oct 5, 2020 | Replies (18)
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Replies to "Teresa, I have symptoms that come and go.sometimes I have long periods of time where I..."
@megansims
So many of us with NETs just don't quite fit into "the box." It is frustrating for both the patient and the doctors who are treating the patient. I'm curious about what you describe as the "highly vascular" mass. Did the doctor say if this was typical of NETs?
Are there any meds that help with the flushing and intermittent diarrhea? What about the wheezing? Do inhalers, etc. help with that?
I do understand the exhaustion. You have a busy schedule with young children, homeschooling and working. Take as many rest breaks as you can, you undoubtedly need that.