1. < Brain & Nervous System

Electrical shocks throughout my body.

Posted by KidWithShocks @braedenl2202, Nov 13, 2019

Hello. I’m not sure if anyone knows what I am talking about but I am hoping that someone does because I am beginning to feel crazy. Every day, I have an electrical sensation feeling throughout my entire body. The only way I can describe it to people is that it feels like I am being shocked by a light switch throughout my entire body. It is very painful, however only lasts from around 5-20 minutes, 1-5 times a day. It’s starting to scare me because my doctor looked at me like I was crazy, and my nurses chuckled when they heard my symptoms. I am going to a neurologist but they cannot fit me in for another month. It’s very painful for me and it has started to come with a red, splotchy rash from my neck down to my legs. If anyone has any idea what this could be and what I can do to surprise the pain, I would really appreciate the advice. And also if anyone else deals with this please tell me because I really am starting to think I am crazy. Thank you!

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lioness | @lioness | Sep 22, 2020
In reply to @maryflorida "I have a question. My doctor diagnosed me with neuropathy and sometimes the pain is manageable,..." + (show)
@maryflorida

I have a question. My doctor diagnosed me with neuropathy and sometimes the pain is manageable, but today, it feels like a "hot" electric wire going from my low back at the beginning, and then down both legs on the outside of the leg through the knees and to the top of my feet. Not exactly like sciatica's path though. Is this the way it is for you all? It is not like an electric shock exactly, which I have had after various surgeries; it is like a a charged hot wire.
It immobilizes me for the day and then the next day it is not as crippling, more like an ache.

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@maryflorida I agree with you as that's how I feel today especially my arms to finger but all my Drs are not seeing patients yet Just feel miserable

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lioness | @lioness | Sep 22, 2020
In reply to @maryflorida "I wondered about that. My doctor only sent me to a rheumatologist. I thought a a..." + (show)
@maryflorida

I wondered about that. My doctor only sent me to a rheumatologist. I thought a a PPO plan meant you don't need a referral though. I will check with insurance and then will follow up when I can. Problem is that my husband is very sick and our kids are all over the country. I have trouble finding time to take care of myself right now.

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@maryflorida You are important if something happens to you what would your husband and kids do so take care of yourself .I'm going to call for an appointment today to a neurologist

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1 reply
maryflorida | @maryflorida | Sep 22, 2020
In reply to @lioness "@maryflorida You are important if something happens to you what would your husband and kids do..." + (show)
@lioness

@maryflorida You are important if something happens to you what would your husband and kids do so take care of yourself .I'm going to call for an appointment today to a neurologist

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Dear Lioness, (leona?).. I will call insurance today and see why I need a referral when I have a PPO plan. Thank you. I feel like we could be friends; you are so thoughtful.

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1 reply
lioness | @lioness | Sep 22, 2020
In reply to @maryflorida "Dear Lioness, (leona?).. I will call insurance today and see why I need a referral when..." + (show)
@maryflorida

Dear Lioness, (leona?).. I will call insurance today and see why I need a referral when I have a PPO plan. Thank you. I feel like we could be friends; you are so thoughtful.

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@maryflorida I don't see why you need a referral on a PPO call your insurance and find out Wish we had a magic wand to wish it away Linda

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howshu | @howshu | Oct 8, 2021

Over 2 years ago every 20 to 30 days I would get get whole body shooting pains like when you hjit your elbow. They last 4 to 6 minutes often with dry heaves they stop for about 40 mintres and start agin for 5 to 6 hours. Wipe me out Neurologist cant stop Taking 75 mg Trokendi XR Why only every 20 to 30 days why like elecric shock

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1 reply
Amanda Burnett | @amandaa | Oct 9, 2021
In reply to @howshu "Over 2 years ago every 20 to 30 days I would get get whole body shooting..." + (show)
@howshu

Over 2 years ago every 20 to 30 days I would get get whole body shooting pains like when you hjit your elbow. They last 4 to 6 minutes often with dry heaves they stop for about 40 mintres and start agin for 5 to 6 hours. Wipe me out Neurologist cant stop Taking 75 mg Trokendi XR Why only every 20 to 30 days why like elecric shock

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Hello @howshu and welcome to Mayo Clinic Connect. You'll see that I moved your post to a discussion already talking about full body electrical shocks. This is so you can connect with other people who are going through similar issues as you.
You might be interested in this article as well What is Lhermitte's sign?: https://www.medicalnewstoday.com/articles/323889.php
Have you been taking the medicine for 2 years? Do you only take it when the symptoms occur?

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1 reply
howshu | @howshu | Oct 9, 2021
In reply to @amandaa "Hello @howshu and welcome to Mayo Clinic Connect. You'll see that I moved your post to..." + (show)
@amandaa

Hello @howshu and welcome to Mayo Clinic Connect. You'll see that I moved your post to a discussion already talking about full body electrical shocks. This is so you can connect with other people who are going through similar issues as you.
You might be interested in this article as well What is Lhermitte's sign?: https://www.medicalnewstoday.com/articles/323889.php
Have you been taking the medicine for 2 years? Do you only take it when the symptoms occur?

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every night

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1 reply
Mentor
John, Volunteer Mentor | @johnbishop | Oct 9, 2021
In reply to @howshu "every night" + (show)
@howshu

every night

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Hello @howshu, I would like to add my welcome to Connect along with @amandaburnett and others. Are you able to share a little more about your diagnosis and any tests that you've had?

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oldkarl | @oldkarl | Oct 9, 2021

@johnbishop I am not @howshu, but I have had shocks throughout my body occasionally for 81 years. They seem to hit from my left big toe and go to the top of my head. They hit a few times per year. My major diagnoses that would seem to count here include Gelsolin, LGMD2m with Walker-Warburg, Epilepsy, RYR1, RYR2, leukemia, disappearing cerebellum white matter, rheumatoid arthritis, Clarkson's Disease.

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1 reply
Mentor
John, Volunteer Mentor | @johnbishop | Oct 9, 2021
In reply to @oldkarl "@johnbishop I am not @howshu, but I have had shocks throughout my body occasionally for 81..." + (show)
@oldkarl

@johnbishop I am not @howshu, but I have had shocks throughout my body occasionally for 81 years. They seem to hit from my left big toe and go to the top of my head. They hit a few times per year. My major diagnoses that would seem to count here include Gelsolin, LGMD2m with Walker-Warburg, Epilepsy, RYR1, RYR2, leukemia, disappearing cerebellum white matter, rheumatoid arthritis, Clarkson's Disease.

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@oldkarl Did you see this reference earlier in the discussion? Wondering if it sounds familiar to your symptoms.

What is Lhermitte's sign?: https://www.medicalnewstoday.com/articles/323889.php

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