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DiscussionHas anyone else been diagnosed with an endolymphatic sac tumor?
Brain Tumor | Last Active: Mar 16, 2023 | Replies (28)Comment receiving replies
Replies to "Hi @kayjaylauren, and welcome to Connect. Although I couldn’t find members who’ve discussed this exact condition,..."
Hi @kanaazpereira, thanks for this info! I wish there was someone out there with the same tumor to connect with! But I know it’s so rare, I’ve researched similar skull base tumors before specifically acoustic neuromas and Dr Bendok and Dr Weisskopf will actually be performing my surgery next month! I’m not sure if I will need radiation but I’ve already met the radiation team and Dr just in case! Once again thanks for this information and reaching out!