Mayo Clinic Connect
Dr. Alfredo Quiñones-Hinojosa and Dr. Hugo Guerrero Cazares answer questions about brain tumors.
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Will this discussion be in a closed group on FB? My diagnosis is private. Only very few know. Thanks!
Liked by Scott, Volunteer Mentor, taterjoy
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No, it will be broadcast on the Mayo Clinic Facebook page, however, you can watch here on Connect. I will not read the names or usernames of people with questions, but simply say “a Connect member” or “a viewer on Facebook.”
Liked by Lee Aase, Colleen Young, Connect Director, Scott, Volunteer Mentor, taterjoy
I’ll be at work, so will this be available to view some place else? If so, where? I’m a 25 year brain tumor survivor, but I’m still very interested in learning as much as I can about tumors and the new treatment options.
Liked by taterjoy
@lynda1992, the video will be archived right here on this page immediately after the live broadcast. You can find all archived Video Q&A events here: https://connect.mayoclinic.org/webinars/
For those of us who cannot participate “live,” is it possible to submit a question? One of my relatives is a four year survivor of glioblastoma multiforme, doing well. However, their sleep schedule is off (maybe it’s that Non 24 syndrome?) and it dramatically effects the caregiving spouse’s sleep and energy level, too. Their neurologist has not approved trying Light Therapy or Melatonin. I was wondering if this is common to GBM, or if the Mayo physicians feel it is peculiar to THIS case (and/or may relate to the area of her tumor/surgery). If there is any research or experience they’ve had, I would be grateful. If you feel this is more appropriate for a topic on the brain tumor site, I will post it there.
Liked by Colleen Young, Connect Director
Thank you, @taterjoy. I will be happy to ask this question during the broadcast.
Thank you, Audrey!
I would like to know more about the NF1 & TP53. These were found recently in my daughters pathology of her brain tumor. She has a Pleomorphic xanthoastrocytoma tumor. A surgery February 10th and now another surgery scheduled because the tumor has aggressively grown back and in 2 months tripled its size. Thank you!
Hey I’m not all that technically savvy. I just registered but how do I connect to the chat ?
Hi Sandy, no worries. All you have to do is come back to this page and the video will be at the top. If you aren’t able to log on at the time of the broadcast, it will be archived here to watch later, too.
I have a benign dermoid tumor located above the basilar artery in the Circle of Willis. It was discovered by accident January 2015 with a CAT scan to the brain after I had fainted and taken a fall. It was followed up with an MRI. I can find very little information on this kind of malady and was told by my family physician not to worry about it unless I developed symptoms. The radiologist report also advised to follow up with a neurologist if symptoms arose. The problem is I have no idea what symptoms would signal a problem. I am 61 years old and in good health, but had a second fainting episode and fall in January 2016. I was referred to a cardiologist who diagnosed it as orthostatic hypotension. What symptoms could arise that would be attributed to this tumor given its location as opposed to normal age-related problems and/or orthostatic hypotension? I have no idea what symptoms could arise or what would signal that I should be referred to a neurologist.
Hi @that_girl. Unfortunately, we cannot provide second opinions or make specific treatment recommendations through this correspondence. Some patients are asymptomatic. I did send your questions to a Neuroscience team member, and they recommend that you ask your primary care provider to research it, since they know your care best.
Due to the expected effects of Hurricane Irma, this Live Q&A has been rescheduled for Wednesday, Sept. 13 at 1:15 p.m. ET. We apologize for any inconvenience.
Liked by Scott, Volunteer Mentor, EES1
Good decision from my perspective.
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