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@pcfromfm

Hi @yrose-thank you for joining our group! We sure have all have had most of your experiences! You are in the right place! I too had the “perfect halo” show up on the CT. I was diagnosed many years ago and generally found somethings that work for me. Right now I -with many diet specifications, a positive outlook, much rest and a few giggles a day -can actually manage a somewhat good life and even travel with little pain and only some discomfort. It’s all good really. It can be overwhelming for sure. But knowing there are others to talk to helps tons! Sending good thoughts -track your food and activities to see what you can manage and not. Go to bed early every night you can-rest as much as possible. Talk to us and ask lots of questions-we are all a little different but share much. ❤️

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Replies to "Hi @yrose-thank you for joining our group! We sure have all have had most of your..."

Hi@yrose-Welcome. I agree with everything said. I would like to add, reduce your stress (lack of information on this illness created a lot of anxiety for me, finding this group chat helped me kick start my healing process) I started to monitor all aspects of your life in hopes of improving my health. You will find a lot of what you do personally can greatly impact your health. I have managed to reduce my symptoms with daily prayer, monitoring my food intake, research and implement dietary changes that improved my immune system and reduce inflammation (lots of fruit, veggies and fish works for me). I rest when needed, drink lots of water and take vitamins that are known to reduce inflammation. I have added a daily spreadsheet that monitors my breakfast, morning snack, lunch afternoon snack, dinner and evening snack, with a section devoted to notes on how I feel and where my aches and pains. I will add, this was not a short-term illness, I have been dealing with stomach related issues for 4 months now. It took several doctor appointments and after my CT scan that noted "Unchanged mass-like stranding at the root of the mesentery. Findings are nonspecific and may be seen in the setting of mesenteric panniculitis" nobody was convinced of my diagnosis. Two different surgeons refused to perform a biopsy indicating it was too risky and that my haziness was not severe enough to warrant a risky biopsy. So I'm on a watch and wait. As of right now, I continue to feel better every day. I know that I am improving my overall health which is all I can do to beat this and anything else that comes my way. I hope this helps. I appreciate all those who took time to write on this site. It truly helped me with my research and directions. Best of luck and good wishes.