I am writing hoping initially share what has happened through my journey with this new diagnosis since March, 2019. It all started with a few months of bloating, abdomen pain, loss of appetite, and irregular bowel movements. Then in March, a few days of abdomen pain, and eventually, a trip to ER with vomiting, and more intense abdomen pain. I had complained about a lot of bloating to my doctors who seemed indifferent to my complaints until it took me to ER with more dramatic symptoms. Tests were done including a CT scan. It showed that I had mesenteric panniculitis, a rare autoimmune disease with the mesentery inflamed forming a ring formation that appears on the CT scan. My family doctor referred me to many doctors, diuretic for fluid/abdomen.
I was seen by a colon doctor, he suggested seeing a gastroenterologist who found via endoscope a small hiatal hernia , inflamed stomach, lower esophagus and treated via meds for this condition. Did nothing for the abdomen discomfort that happened every time I ate. Once he treated the hiatal hernia, he referred me to an oncologist. The oncologist suggest he would follow me up with another CT scan in 6 months to make sure this is not lymphoma or developing into it. October, I had the follow up scan and the condition showed some improvement. So, he has scheduled another scan in 8 months to check for changes. The only treatment for the abdomen inflammation that has been done, is my family doctor referred me to a dietician who has put me on probiotics, calcium tablets, stomach and hepatic enzyme tablets, and a fiber powder. At each doctor’s visit, each doctor seemed puzzled by the condition, unsure what to address as to treatment. I am unsure what to do. Wait and see what happens? I do not even know what specialist to go to that knows what to do.
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