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aliceorangebike (@aliceorangebike)

Nissen fundoplication success

Digestive Health | Last Active: Apr 28 11:07am | Replies (25)

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@mey2020

I had Paraesophageal hernia repair, Lap w/Mesh and Esophagogastric Fundoplasty in 2014. My weight at that time was 178 since that time I have consistently lost weight I now weigh 110 lbs. I have had every test and they say everything is fine they can’t find anything wrong. Well, I eat and I still am losing weight. Right after the surgery they told me I could only eat soft food and chew to the consistency of applesauce. In three months I lost weight. If I ate one mouthful too much I got so ill I had to go to bed and the pain was horrible. I would get dry heaves that added to my pain. Eventually I would pass out, and wake up hours later. I was told I have dumping syndrome but does it last 6 years? I am tired all the time, I don’t go out because I am afraid I will get sick. I either get constipation or my poop explodes out of me. The pain in my abdomen is awful. Does anyone have any suggestions what I can do?

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Replies to "I had Paraesophageal hernia repair, Lap w/Mesh and Esophagogastric Fundoplasty in 2014. My weight at that..."

Hello! You are not alone. I so feel your pain! Everything and more is still happening to me… 5 years later. Unfortunately I have to just suffer now. (I have no health insurance after I was forced to quit my 36 year long job due to recovery issues.) My local hospital gave me 6 months of financial aid recently because now something bulges out under my front ribs when I sneeze, cough hard or bend over too long. It hurts more than labor and I have to immediately be flat on my back pushing it back in. Then very sore for a day or two there. Am afraid it is gonna bulge out and pinch and stay out. Two Drs said I had a hernia & sent me to a surgeon who pretty much told me he didnt feel a hernia and blamed it on sutures. SUTURES?? I ended up crying… begging him to help me. He reluctantly ordered a couple of tests which showed nothing. Then covid hit and appointments were cancelled. A month after the last test I had to call and request an appointment in person. After discussing more of my past surgeries, he flat out told me nothing can be done and maybe I should see a nutritionist and get a colonoscopy. He blamed everything on adhesions and that no surgeon would ever go in there. The cure is the cause.
Throughout the past 15 years worth of surgeries I have no gall bladder. Had a 5 lb messenteric abdominal cyst removed through open surgery. Then developed incisional hernias the whole length of the 8" incision. The solution was to implant mesh. (All these years later I learn its the bad mesh, made with hulahoop materials, which now a huge lawsuit ensues nationwide.) Anyways… that led to a hiatal hernia, then Nissen fundoplication, which broke down in 2 years, also have dysphagia. Then a takedown of the Nissen into a toupet fundoplication. Both surgeries included 2 hours of cutting through adhesions to get to stomach. So… he figures that after 5 years I am loaded with adhesions and he wont do it.
Now what? I am starving slowly. My starting weight was 210. I now weigh 104. I can lose 3 pounds just gardening in the hot sun. I have no muscles, no fat, no energy. Food is the enemy. It hates me. Everything gives me a stomach ache. You never know when it will attack from within… that one more bite… and that dumping… AAauuugggaahhh!
I hate this. My next try at feeling better will be that maybe I can go to Mayo. But without health insurance or a job… fat chance I will get to go. Please keep me in the loop… on the chance that you find help and relief. I wish you the best. We deserve better. I was PROMISED this would fix me. All trust is gone… especially when he left his practice 4 months later and they wouldnt tell me why. Quack? I am only 59 and have so much more to give… I just need to stop dwindling away. Thank you for reading my ramblings.

@mey2020

I understand a bit of what you have and are going through. This is a small part of my story at my blog.. which I have been neglecting for a long time and need to update: https://zarogasnook.blogspot.com/2015/08/a-long-time-passing.html . No ads on the blog that I am aware of.

I have dropped down to as low as 115lbs and am back up to 135lbs now… it will go up and down depending on how active I can be.

This is the best list I have seen for foods to help with the bowels.. either diarrhea or constipation. https://www.squattypotty.com/blogs/blog/the-ultimate-list-of-foods-that-bind-vs-those-foods-that-loosen-stools . I take a probiotic pill, Align. I tried many different ones and it is the only one that helped with me. I still have dump days, but rarely watery bowels anymore. Yogurt with live culture helps, but I am not very fond of it.

If I can help in any way just ask away.

ZeeGee