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pjkb1health (@pjkb1health)

PBC Symptoms and dealing with extreme fatigue

Autoimmune Diseases | Last Active: Feb 17, 2020 | Replies (12)

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@pjkb1health

Thank you, Becky. I have not had any help yet with the fatigue. I have discussed symptoms with my pcp, and I have had recent blood tests, and will have some scans. We’ll see, after the results. I am told exercise may help, but extremely difficult with the various issues and fatigue. Thank you for your input.

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Replies to "Thank you, Becky. I have not had any help yet with the fatigue. I have discussed..."

@pjkb1health, I am familiar with fatigue caused by liver disease. I had PSC (Primary Sclerosing Cholangitis) which also affects the bile ducts.
I also was told that exercise might help, and in the beginning I used to walk with a couple of fellow teachers after school. We either walked on the cross country course or did laps in the gym. We all agreed that we needed each other for motivation. The added benefit of conversation, made this a fun time for us.
Do you have anyone to partner with for any kind of walking or activity? It does not need to be anything elaborate – there is benefit to a short walk around the block, or around the house at regular intervals during the day.

Please check with your doctor before you take any over the counter medication or supplement. You don't want to do anything to add any stress to your liver.
Is your PCP working with someone who is experienced with liver diseases? My PCP referred me to a GI(gastroenterologist) who consulted with a liver specialist about my treatment for my liver disease.

I would like to invite you to this Primary Biliary Cholangitis and Autoimmune Hepatitis Discussion.
https://connect.mayoclinic.org/discussion/primay-biliary-cholagitis-and-autoimmune-hepattitis/
I send my thoughts as you await the test results.

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