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Cellcept and increased creatinine

Transplants | Last Active: Dec 12, 2019 | Replies (23)

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@contentandwell

@mostlybill Has it been suggested for you to increase your fluid intake? That helped my creatinine. They still wanted it lower though so they switched me to sirolimus but I continued to drink lots of water. Now with 60 - 70 ounces of fluid a day my creatinine is slightly over 100 which is considered to be acceptable.
JK

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Replies to "@mostlybill Has it been suggested for you to increase your fluid intake? That helped my creatinine...."

They do ask about water intake. Sometimes I walk away feeling confused. I carry a notebook into each appointment, and my wife is with me as an extra set of ears. I also request that instructions for changes be provided in writing. But the reality is, when I get home I feel confusion about diet. The numbers seem to change week to week. One week everything is normal and I'm told not to worry. Then next time creatinine and potassium is out of bounds and I'm back to worrying about diet. One of my problems is forgetting to take water with me in the morning. I get on a job site for 8 hours and I'm stuck. I need to secure a reusable water bottle.