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Cellcept and increased creatinine

Transplants | Last Active: Dec 12, 2019 | Replies (23)

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@mostlybill

Even weeks after dropping Cellcept, my creatinine remains high, and potassium as well. I am vitamin D and magnesium deficient also. I feel good, but I worry in spite of the doctor's assurance things are good. I am trying to do my best with diet, but even after several consults with the nutritionist, it can be confusing understanding which foods to eat. Beans and whole grains are out. Dark leafy greens are out. No bananas, oranges, potatoes, nuts and dairy. It seems like I need to avoid or limit all of my favorite foods.

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Replies to "Even weeks after dropping Cellcept, my creatinine remains high, and potassium as well. I am vitamin..."

@mostlybill I believe it is your post regarding nutrition? I eat mainly beans, legumes,nuts,dairy and dark leafy vegetables. I have had no desire to eat meat especially post transplantation. I eat a banana and a greek yoghurt every day. These are all foods I am encouraged to eat. What reason did the doctor give you for having to avoid these foods? That certainly does limit your diet! I take tacrilomus (1mg every 12 hours). Is the restricted diet interfering with your medications? I am having a hard time comprehending this.

@mostlybill Has it been suggested for you to increase your fluid intake? That helped my creatinine. They still wanted it lower though so they switched me to sirolimus but I continued to drink lots of water. Now with 60 - 70 ounces of fluid a day my creatinine is slightly over 100 which is considered to be acceptable.
JK

Have you tried Ketosteril for kidneys? My doc once gave me this to tackle Tacrolimus hamr but my kidneys, thank God are not so bad so I am not taking them.