Connect
← Return to Living with Syringomyelia
Discussion
Spine Health | Last Active: Sep 19, 2024 | Replies (71)
Comment receiving replies
Hello @nancy82415. I see you have met many members in the chiari malformation discussion (https://connect.mayoclinic.org/discussion/chiari-malformation-type-1-20782d/) but would like to discuss syringomyelia with Connect members. I'd like to invite @resawaller, @tbaxter33, @fitchizumi
@adam782002, and @luckygirl to this discussion as they have all discussed syringomyelia on Connect in the past. @nancy82415, if you don't mind starting the conversation off, what aspects of living with syringomelia would you like to discuss?
Replies to "Hello @nancy82415. I see you have met many members in the chiari malformation discussion (https://connect.mayoclinic.org/discussion/chiari-malformation-type-1-20782d/) but..."
Connect
I was diagnosed back in August 2015. Had surgery September 2015. Syrinx was at least 11mm starting from my foramen magnum to my T6. It decreased in size, but it has gotten longer. Recently have noticed after doing physical labor (yard work) I am finding that my legs feel tired. They also feel stiff after sitting for awhile. This starts right away and continues for a few days after. I am documenting this in my journal to bring up at my next neurology appt this summer. I will then be getting a full spine MRI. This will then show how long the syrinx is. Last full I was at T9. So I guess I was wondering if others are experiencing this.