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Small Fiber Neuropathy

Neuropathy | Last Active: 6 days ago | Replies (95)

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@swartzki

My heart goes out to everyone who has shared the debilitating effects that small fiber neuropathy has bestowed upon them. I have yet to meet one other person who is experiencing hair loss because of it . I know it's the neuropathy because my head tingles and itches. I had gorgeous, thick blonde hair. Over the past three years, all of it has fallen out piece by piece. I mean ALL I can't believe what I'm seeing in the mirror, and I just cannot cope with it. I can't leave the house without a wig anymore, and I can't find one that doesn't look like a bird's nest. The anxiety from this effect alone is unbearable. It was my worst fear, and how it's here. I don't know how to adjust to this. Anyone?

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Replies to "My heart goes out to everyone who has shared the debilitating effects that small fiber neuropathy..."

I haven’t been diagnosed with this but I’m loosing my blonde locks too!

I am also noticing huge hair loss. I'm afraid I will also need a wig in the future if it keeps going as I'm extremely thin now on top and you can see my scalp.
What I find interesting is every single time I do wash my hair it sends me into a complete flare.
I used to wash my hair everyday, now 2 times a week because I can't deal with the after effect. Somehow I believe when washing my hair it stimulates the nerve fibers.
But, yes definitely a lot of hair loss here as well. 😞 I can relate to looking in the mirror and thinking how much this has aged me in a short time.