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Phantom Pain

Chronic Pain | Last Active: Sep 17, 2023 | Replies (9)

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@JustinMcClanahan

Hello @corinnemcg, welcome to Connect. I'd like to invite back @makmes and to this discussion to share their experience with amputation and feelings like the limb is still there and the pain that it can bring. I'd also like to invite @lillee back as they talked about their experience with phantom pains with their double amputation.

Here is what Mayo Clinic has to say about phantom pain, https://www.mayoclinic.org/diseases-conditions/phantom-pain/diagnosis-treatment/drc-20376278. Very similar to your experience.

@corinnemcg, have you tried any other treatments than pain medications? Mayo Clinic (in the link above) talks about other treatments that have worked for others such as: Mirror box, acupuncture, Repetitive transcranial magnetic stimulation (rTMS), and spinal cord stimulation.

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Replies to "Hello @corinnemcg, welcome to Connect. I'd like to invite back @makmes and to this discussion to..."

MY MEDICALLY RETIRED MILITARY DAUGHTER IS A LEFT LEG AMPUTEE AS WELL AS A SEVERE TBI, ALONG WITH MANY OTHER INJURIES. SHE DOES NOT HAVE PHANTOM NERVE PAIN ALL THE TIME, BUT WHEN IT HITS, IT IS AWFUL! SHE IS ON GABAPENTIN. WHEN IT GETS BAD, I TAKE HERE TO THE HOSPITAL. WE HAVE TRIED EVERYTHING WE CAN THINK OF, ANY NEW IDEAS?