Autoimmune encephalopathy anyone?

Hello @tanap1, I ran across an article that may provide some helpful information for you. Right Diagnosis Leads to Relief From Autoimmune Encephalitis -- https://intheloop.mayoclinic.org/2019/03/19/right-diagnosis-leads-to-relief-from-autoimmune-encephalitis/

Thank you so much! I will take a look at it. The more informed the better, right? I'm just so hoping to not be dismissed by a new doctor. Unfortunately, I have been by a few.

@tanap1 there is another discussion that you might want to join since you mentioned you have also been diagnosed with Hashimoto Thyroiditis. There are probably more members with similar symptoms in the following discussion.

> Groups > Autoimmune Diseases > Hashimoto's Thyroiditis and IVIG Treatment?*
-- https://connect.mayoclinic.org/discussion/hashimotos-thyroiditis-and-ivig-treatment/?utm_campaign=search

You are right, information is power so the more you know about your disease you will hopefully be able to find a treatment that helps.

Dear Tapap: Do not feel bad. I was also dismissed by a doctor: LISTEN TO THIS: Went to my new geriatric doctor complaining of severe constipation, diarear, never- ending gas, severe pains, etc., etc.,. After she SCREAMED at me for at lease fifteen minutes beliteling me (so loud that the people in the waiting room heard this) and putting me down I said nothing and went home to change doctors. At age eighty two I should know my body. Well, now here comes the kicker: While seeing the oncologist for my severe anemia (low white cells and others) about four months later I was told to have a cat scan with drinking a solution that would show the lower area of the body.) I did so and the results: My entire lower half of the body has prolapsed downwards with large areas of (forgetting the medical terminology) of mass. on and on. So shame on the doctor who allowed my body to become more damaged. Do you think she was going through change of life She was the right age for this?) I will be kind (I have not forgiven her as yet. Still working on this.) Would love to place her name here but I guess I am still working on being too kind. I think this doctor was bragging to some of her doctor friends and it got back to my new doctor who had me take the cat scan. SO...SEE...There was this first doctor and then there was THIS WONDERFUL, GREAT AND GOOD DOCTOR. God bless her. (Last thought: Is she still doing this to other patients? Should this be reported?)

@peach414144 I am so glad you advocated for yourself AND changed doctors. But, I’m also sad with what the oncologist found. (give yourself a pat on the back) And it’s very helpful to others when you tell your story (maybe not as much detail 😜). You might think of writing a very nice, pleasant letter to your geriatrician explaining the outcome. And you have left her practice because of her manner. The nicer you are, the better you will get your message across. Please let me know what happens healthwise.

Hi Becky, Peach here. After this doctor screamed at me I left her office, went home and went onto the Internet to find a new doctor and that same day I changed doctors. That did make me feel somewhat better. I have gone through many tests that confirm the prolapse in all the lower areas. Still do not know what kind of a doctor could help me. It is so difficult not just to stop the body excretions but to be able to pass them is even harder. Quite a difficult way to live. Please, anybody out there, help me, The gynecologist has no answers for me. Would it be my family doctor? Even though I presented this to my gastro doctor he did nothing. Perhaps a different gastro? Or both? Thank you in advance.

Dear Becky, forgot to add. The family doctor put me down so bad she had to be going through a miserable time in her life which stil does not give her the right to not help her patient. Perhaps something could have been done to stop the rest of the ,lower half of my body from descending if she addressed the problem. Has she hurt other patients or was I the only target? She belittled me severely. Do not worry, I am fine now. Even if she was going through a very difficult time in her life she should have thrown herself into her practice and helped her patients instead. Should she continue in her practice? And how could she not have realized the serious problem I was presenting to her? This goes deeper than I originally realized. Becky, you are kind to think of me and I do appreciate and thank you.

@peach414144 This web site may help you with pelvic organ prolapse. You can get some information and figure out where to go next. https://www.mayoclinic.org/diseases-conditions/pelvic-organ-prolapse/symptoms-causes/syc-20360557. If you have a doctor now, he/she would be the one to ask for a referral. Who asked for the CT scan and read the scan report?

The doctor who set me up for the scan was an oncologist who I was using for my anemia and she also read it. I did not ask her to do this. I am pretty sure she heard my ex doctor bragging about the stupid patient that she yelled at. thank you and yes I will ask my new doctor to help me with this. There are all knds of people in this world and it includes doctors. I would like to ask her "Are you proud of yourself?"

@peach414144 Hi Peach Lioness here good for you in getting rid of that rude person . I would think that a good gyn. is the one you want to see but know this person and trust her . Go to your Dr and ask him My best friend has some prolapse and her gyn gave her a pessorie to wear . I lost track to see if it has helped her or not . You are very kind in acting this way about that person. Maybe she was going through the change but that's still no excuse to act as she did . Let us know how you are doing we all care her