← Return to Want to hear from others who have Stage 4 Chronic Kidney Disease (CKD)

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@pbstpa

Hi @anet. I hope your husband continues to be doing ok. Coming in a little late on this thread but wanted to tell you I have been Stage 4 for over 24 years. I just turned 60. I am not on dialysis but my function continues to slowly deteriorate. I recently got accepted for the transplant list hoping for a new kidney before I progress to Stage 5. As of now, I'm able to work and pretty much live my life as I please except for all the doctor, transplant center and lab appointments. Fatigue is my enemy so I try not to overdo it. So, of course, you're worried, but keeping a positive attitude, will go a long way for both of you.

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Replies to "Hi @anet. I hope your husband continues to be doing ok. Coming in a little late..."

How have you kept your kidneys from getting worse?

I am amazed at how long you have been at stage 4. Have you done anything to stay there? I am 61 stage 4 and they are talking like dialysis is imminent. I am praying I can stay stage 4 for the rest of my life

wow you give me hope, stage 4 for 24 years, amazing. i am 80 no diabetes..had chemo maybe a cause, but pharmacy said cholesterol meds caused my kidney disease, try to follow diet, have onion soup daily, supposed to be great for kidneys, scary thing to me some days, not as tired the days i have pool exercises