← Return to mal disembarkment syndrome (MdDS or MDD)

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nitalisa (@nitalisa)

mal disembarkment syndrome (MdDS or MDD)

Ear, Nose & Throat (ENT) | Last Active: Oct 15, 2019 | Replies (4)

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@lisalucier

Hi, @nitalisa – it makes sense to read up and find all the pertinent information you can on mal de debarquement (MDD), One resource you might check out if you've not already is https://rarediseases.org/rare-diseases/mal-de-debarquement/.

I'd like to introduce you to @hopeful33250, who has a movement disorder and may be familiar with this disease. @johnbishop may also have heard of it and/or may have some resources on where he looks for high quality medical information.

What symptoms or challenges has your partner faced with (MDD)?

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Replies to "Hi, @nitalisa - it makes sense to read up and find all the pertinent information you..."

Sorry, I had/have to leave this project and work on another project of assisting another group of people. I won't be able to come back to this until end of November. His MDDS has been going on now for 6 years. It's not a life threatening situation, just now getting into the realm of realizing that it has and is inferring with future life plans. I'll be back and we will see if he is ready to peruse this venue of search and research. Thank you for the help so far.