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Livedoid vasculopathy group: Checking in, how are you doing?
Skin Health | Last Active: Apr 13 5:40am | Replies (27)Comment receiving replies
Hello my fellow sufferers! I'm Curtis Miller, I've been dealing with my LV since November 2011 but wasn't correctly diagnosed until it showed up on my other ankle! That was April 2015! My right ankle healed in 2017 thanks to a NP at the Paradise Valley Hospital center for Wound Healing. She kept trying new meds to find something that would work and it seemed like going back and forth from Silver Alginate and Anasept gel and bandage changes daily with debridment once a week has it nearly healed. Before she started working on my feet I kept being told I should let them cut off my foot! And even after it started healing one Dr said it will never be the same as it was and I should cut it off anyway! My right ankle is discolored and has a few scars and my left is healed except for 2- 1/4 to 1/2 inch spots that are very shallow compared to the gaping holes I had that were 4mm deep on average with some spots deeper. I'll try to remember to take pictures of what it looks like, can I post them here? Nurse Kelly Knight and her crew at the wound center have me walking correctly again and I only go see them every 2 weeks now and I'm looking for a Jeep to go camping again! That's it, except does anyone else still get the various pains in their healed ankles/feet? OK, Happy Trails!
Replies to "Hello my fellow sufferers! I'm Curtis Miller, I've been dealing with my LV since November 2011..."
Hi Curtis, So glad you are doing better . Do you take Xarelto to prevent new ulcers? I had three ulcers over the last 10 years that were as deep as you describe yours. My plastic surgeon did skin grafts on them all which allowed the wounds to heal. LV is a chronic disease as you know, so it sounds like you have found a good team to help you. Zenk
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Curtis, I had a ulcer on the top of the arch of my left foot. That's where they did the biopsy. It healed then came back, and has now healed for some time BUT it often hurts and is sensitive and I can feel it down to the end of my big toe, like a tightened rod. I worry that it's going to return as a hole. 🙁 I only had one on each foot, others were on the lower legs. The other ulcers I had to start with have healed. So glad you didn't have your foot cut off and that you are walking correctly again.