@amywood20 Sometimes we have to take things one day at a time. TOS requires patience for recovery, and there is surgery for TOS, but my doctor advised against it because creating scar tissue there will just add to the tightness that already exists, so I wouldn't assume a diagnosis of TOS would automatically indicate surgery. My therapy is myofascial release for TOS, and some strength training, but limited, so as not to kick up symptoms. I would think that using crutches will hurt in your present condition, so think that over if you really want to do a surgery that will require crutches for a while. Also, don't diagnose yourself. No doctor will want a patient telling them how to do their job. the Mayo doctors can take care of things, and your job is to explain your symptoms. They can easily test for TOS by listening to your pulse in your neck and have you turn your head. When you have TOS along with a cervical spine issue, you have overlapping symptoms.
Yes, you can have TOS symptoms while on your back. It is raising the arm that brings it on. The problem is the front of the chest is too tight and it causes the shoulder blades to wing out. Bad slouching posture causes symptoms too.
The tingling in your leg can be from a pelvis dysfunction and it can seem like a lower spine problem. My TOS causes tightness from my jaw to my pelvis on one side and it causes my pelvis to twist out of shape. You might want to read the training and Rehabilitation article on that. https://trainingandrehabilitation.com/identify-treat-lumbar-plexus-compression-syndrome-lpcs/
Good luck with appointments.
@jenniferhunter I know, one day at a time. I need to figure out how to get out of my head. That's my personality and once I fixate on something it is hard to put it down, so to speak. The spine specialist I will be seeing is not at Mayo since I live nine hours away but if I don't get answers here, I will definitely go to Mayo. My foot is in the door since I had one of their rehab docs look at my imagines and do a few in office tests. She felt an EMG would be the next step since she wasn't able to draw any firm conclusions. Mayo could have done it a few days later but I was flying back home the next day. We'll see what the spine doc wants to do. My fear is that he will think it's the shoulder. The shoulder doc thinks it's the cervical spine so if that were to happen I am left in the middle. I will say the full thickness tear in the other shoulder feels nothing like the other one. I need to get all of this figured out soon since the full tear is starting to give me grief whereas a month ago it was pretty mild. As far as the crutches, that should only be for a few days and I can start walking normally as tolerated. There isn't a tear or anything to repair as it's just cleaning up scar tissue. I've had it done before but can't remember how much I used the crutches. I want to say not much at all. I do have a walker from a hip scope three years ago and could use it, putting the weight on my hands. Probably not much better but maybe some. I need to dig it out and try. I just know if I don't do it now it will be many, many months before I will be able to due to shoulder surgery. I've been dealing with it for a year and a half already. I'm leaving the door open to canceling it but very well may not. At least it would be one thing fixed I could check off. Thanks for the link and all of your responses!