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bumble81 (@bumble81)

Facial fasiculations and drooping eyelid

Brain & Nervous System | Last Active: Dec 29, 2019 | Replies (34)

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@michelles123

Hello – sorry for the late response but I also have the twitching on my right side. The Neurologist said it was Hemifacial Spasms. I have had Botox several times to see if this calms it down – the other option was surgery. I’m not sure what caused this – it’s very frustrating.

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Replies to "Hello - sorry for the late response but I also have the twitching on my right..."

Hi. I started with Botox because the first neurologist never gave the diagnosis but said options were invasive surgery or Botox. I found Botox to be only a band aid approach and tried physiotherapy because I thought the pinched nerve could be moved . Once off Botox and physiotherapy not working, my twitches were awful and very distracting,with my eye shutting frequently. I was referred to a new neurologist who immediately diagnosed me with HFS, explained what it was and the surgery. So I went with the surgery because it can actually fix the problem. Now, 5 weeks post surgery I notice a huge improvement although if I am tired or after reading a lot twitches occur and I have nausea off and on . January 2 I see my neurosurgeon to learn how long it takes to fully recover.

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