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bumble81 (@bumble81)

Facial fasiculations and drooping eyelid

Brain & Nervous System | Last Active: Dec 29, 2019 | Replies (34)

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@jakedduck1

@bumble81
Sorry to hear your having seizures. Has your Neuro mentioned that you have Temporal Lobe Epilepsy?
I have Generalized Tonic Clonic Seizures myself but have had some Focals.
What happens when you have your Focal Impaired Seizures? Those can be really dangerous. I walked onto a hi-way and nearly walked into the Grand Canyon. What meds are you taking?
Have you had an MRI and EEG?
In case your not aware there is a seizure section on Connect. Here is a link,
https://connect.mayoclinic.org/group/epilepsy-2bb359/?utm_campaign=search
Best of luck,
Jake

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Replies to "@bumble81 Sorry to hear your having seizures. Has your Neuro mentioned that you have Temporal Lobe..."

She has not mentioned much and we still need to do an EEG, this is all very preliminary. There are some lesions that show on the MRI but she is not sure if they are related. She is actually going off a video I captured last month.
My episodes start with either an unusual smell or sensations. then followed by sudden extreme fear. Sometimes I jump up and start randomly walking but they do not last very long, maybe 30 seconds to a minute but sometimes I have them multiple times a day and I wake up in the night with them feeling like I am spinning. It's very very strange and hard to explain everything I am feeling.
Unfortunately these short episodes are sometimes followed by much stronger attacks that leaves me incapacitated, disoriented, unable to make sense of my surrounding and overwhelmed with a host of physical sensations. I once even urinated on myself and another time fell out of the shower and was hauled out of my house buck naked in the dead of winter by EMT. Fun times:(

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