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bumble81 (@bumble81)

Facial fasiculations and drooping eyelid

Brain & Nervous System | Last Active: Dec 29, 2019 | Replies (34)

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@bumble81

Hello everyone,

There has been a sort of strange turn of events. I recently went to see my neurologist about this new weird symptom I am having. The last year has been nuts and I have had hundreds of strange unexplained episodes that have landed me in the hospital on numerous occasions. I was diagnosed with having refractory panic disorder and pretty much left to my own devices. Nothing helped. Then I recently started having twitching all over my body and most notably on my face under my left eye.

Turns out I have Focal Onset aware seizures, what used to be called Simple Partial Seizures. I may also occasionally complex partial seizures. Those are the ones that cause me to become unaware or mostly unaware, urinate myself, lose time and become incredibly confused and agitated, lose my hear in my left hear and smell things that are not there. This has happened on 3 occasions in the last 12 months:(

So that is what I know at this point.

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Replies to "Hello everyone, There has been a sort of strange turn of events. I recently went to..."

@bumble81
Sorry to hear your having seizures. Has your Neuro mentioned that you have Temporal Lobe Epilepsy?
I have Generalized Tonic Clonic Seizures myself but have had some Focals.
What happens when you have your Focal Impaired Seizures? Those can be really dangerous. I walked onto a hi-way and nearly walked into the Grand Canyon. What meds are you taking?
Have you had an MRI and EEG?
In case your not aware there is a seizure section on Connect. Here is a link,
https://connect.mayoclinic.org/group/epilepsy-2bb359/?utm_campaign=search
Best of luck,
Jake

Hi, @bumble81 – glad you are connecting with @jakedduck1 about the seizures you are describing.

I also wanted to point out some information that may be useful on focal seizures on this Mayo Clinic page on seizures https://www.mayoclinic.org/diseases-conditions/seizure/symptoms-causes/syc-20365711

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