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jmb73 (@jmb73)

Occipital Neuralgia

Brain & Nervous System | Last Active: Jul 24 10:03am | Replies (115)

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@mattie77 What kind of issues do you have with C1 & C2? That can be the source of your headaches. I am a cervical spine surgery patient and I used to get bad occipital headaches and vertigo that happened when C1 & C2 were rotated or tilted. My muscle spasms calmed down after I had a C5/C6 fusion. I also have thoracic outlet syndrome (TOS) that makes my neck and chest tighter on one side, and I suspect that is why my vertebrae will rotate on their own. Physical therapy has helped a lot. My PT could get my vertebrae realigned with the proper curve again which relieves pain except for the affected disc. You may want to look at our discussion on MFR or myofascial release. These other links may be of interest too.

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Replies to "@mattie77 What kind of issues do you have with C1 & C2? That can be the..."

Hello Jennifer, I read your comments and they are similar ( but different) than mine. I have pain in the back off my head when laying down and my scalp is sensitive to touch, but its much worse than that, I also have face pain, jaw pain, pain behind my ear. I just did a nerve ablation of c1,c2,c3,c4 and I'm three weeks in, however, I have not seen any improvement. I know this pain I have I is related to my cervical spine, as movement can light up the nerves and I cannot lay on my right or left side for that matter. Sleeping is difficult and my pain ranges from day to day. I have started to get pain when eating now… so, I have symptoms of both Occipital Neuralgia and Trigeminal Neuralgia. Do you have a doctor that has experience with upper cervical spine issues and treating people with ON/TN? I'm 58 and I don't want to be on a lifetime of anticonvulsants ( which fail over time) not to mention the side effects. Any help is appreciated.