← Return to Occipital Neuralgia: What treatments work for you?

Discussion
Comment receiving replies
Profile picture for bumble81 @bumble81

I have it. It actually got better and stayed better for years and then I had surgery to remove my uterus. As soon as I woke up I asked for pain meds because my head hurt so bad. And then it stayed that way for a year. Now it just hurts when it gets aggravated by being touched. I suspect the base of my head was resting on something during surgery and that is why it came back after surgery.
I believe my ON was caused by a fall off a horse.

Jump to this post


Replies to "I have it. It actually got better and stayed better for years and then I had..."

How did it get better ❤️‍🩹

@bumble81

I had similar experience after carpal tunnel surgery. When being under anesthesia, I think they moved my head and I started having symptoms of ON again. I have been treated for this condition for the past year. I don’t want to take anti seizure med the rest of my life so I am waiting for a nerve block.
I can say that I have taken multiple falls, rear end car accidents, and hitting my head in gymnastics as a child so I believe the nerve gets damaged from all the trauma.
Not sure but it seems logical that this would have started after the nerve gets worn down. It was so painful, I almost lost control driving. It usually happens when I am looking up.
PT helped me strengthen my neck and relieve some pain. Ibuprofen is the only thing I can take as I wait for the nerve block. Ice helps if you can stand it on your skin.