Severe Pain after 2nd TKR

Posted by ssbionicknee @ssbionicknee, Sep 8, 2019

I had a right TKR in May of 2018 and it was painful, but tolerable. Physical Therapy seemed to go fairly smoothly. In August of 2019, I had my left TKR and am having a horrible time controlling the pain and Physical therapy is not going near as smoothly. I went to PT last Friday and was in extreme pain afterward. I was up all night. I had sharp pains inside the wound, extreme sensitivity to touch on the inside of my knee, what felt like spasms in the back of the knee and the knee was very sensitive to anything touching it. I had to keep it still and iced all day Saturday in order to get the pain under control. I know I need to do my exercises, but am afraid of triggering the pain again. I have heard that no 2 knee replacements are the same, but this one seems to be really bad. Is this normal? I have to find a happy medium when doing physical therapy. Any thoughts or suggestions?

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@mclgracie

My left knee TKR was 2010. The ROM went to 93, due to PT and at times less. After numerous "2nd opinions" I finally was told nothing was wrong with the surgery, I finally learned about scar tissue.. Two years later was a reconstruction and 2 weeks of home PT, followed by PT by an excellent therapist. However, after many months, the ROM was a little better, but still stiff and painful. I do stairs one at a time and walking is unsteady. Surgeon said no other treatment will be effective. At the same time, my good right knee is now bone on bone. Im afraid I'll have the same outcome. I was told that 1 percent of people in surgery develop excessive scar tissue. I need advice. Are the chances of getting scar tissue going to be with any surgery? I don't know where to turn.

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Hi @mclgracie - You have been suffering with this problem for a terribly long time. Having had two TKR's I know its not easy, but again, I didn't have anything like the problems you are experiencing. I've read posts from many people who did have problems with scar tissue. Here are a couple of threads that might help you:
https://connect.mayoclinic.org/discussion/scar-tissue-after-knee-replacement/?commentsorderby=DESC#chv4-comment-stream-header
https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/
The last one is on myofascial release. Some people swear to getting great relief from myofascial release and/or acupuncture. Have you tried either of those methods or any other alternative therapies?

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I'm not exactly sure what he meant by abnormal blood work. No I don't think that he have done any testing for metal and cement allergies, but I am going to ask him when I go back. No I have not tried myofascial release and/or acupuncture. I don't think I can deal with the acupuncture because I can't handle the needles I hear that it really hurts. I will check out the links that you sent me thanks everyone for your advice and comments.

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@lynnwade54

I'm not sure, but I do know that I had shoulder surgery back in 2007 & then again in 2010 by another surgeon who said that he had to go back in because scar tissue had built up. Even with that I didn't have nearly as much problems as I am having with my knee. During the 2nd surgery the surgeon said I had so much scar tissue unlike anything he has ever seen within his 10 + years of being a surgeon. All I know is that I am afraid of the thought of the surgeon going back into my knee as well as the good knee, which they say is bone on bone. I'm afraid that I may experience the same issues. I have heard that all surgeries are not the same, well I don't want to take the chance.

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@lynnwade54 With all you have been through I can certainly understand your reluctance to put yourself through that again. If you do get a point where the pain from not having a TKR is really bad you may change your mind. If that happens, make absolutely sure you research your orthopedic doctor and that he is excellent. The doctor who did my second TKR has pretty much all great reviews on the rating sites and when I did have more pain that anticipated after the TKR he was seeing me frequently because he too was concerned!
So, ask people, and definitely check reviews. I do not give credence to reviews if there only a few but if the doctor has been around long enough to have many you can usually trust them. If you wait too long to have a TKR, I have heard the recovery is more difficult. I did that with my first TKR and I was limping badly and in pain all day every day so I took the first doctor I could get.

I had to delay the second TKR and during that time I exercised a lot building up the supporting muscles. That made a huge difference in my discomfort. The knee had gotten so good I had to wonder if I should go ahead or not, but I did. So please do leg exercises that will help to build those muscles up, like bike (I ride my recumbent bike), walking, either regular or on a treadmill, and using an elliptical.

Are you getting synvisc injections for the "good knee"? I found them to help a lot. There is at least one other brand also that I had one time but I found for me that the synvisc seemed to work better.
JK

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@lynnwade54

I'm not exactly sure what he meant by abnormal blood work. No I don't think that he have done any testing for metal and cement allergies, but I am going to ask him when I go back. No I have not tried myofascial release and/or acupuncture. I don't think I can deal with the acupuncture because I can't handle the needles I hear that it really hurts. I will check out the links that you sent me thanks everyone for your advice and comments.

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@lynnwade54 - No acupuncture doesn't hurt. I hate needles too, but it doesn't even feel like a pinprick. After both of my TKR's, I did acupuncture to help reduce the inflammation and swelling. It really helped, and I've read of others who had the same result. Now, I'm not saying it would help with severe scar tissue build up, but it did help me recover my ROM more quickly. Will you let us know when you learn what the doctor says?

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Sounds awful. Was it done by same doctor? Now I'm scared, I'm having my second replacement, left knee, done next week!

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Hi everyone, to answer your questions; no I am not getting synvisc injections for the "good knee" I'm really afraid to have anyone do anything to the right (good) knee.

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Hi everyone, to answer your questions; no I am not getting synvisc injections nor acupuncture to either knee, my surgeon nor therapist never mentioned acupuncture or injections to me. At this point I am so afraid of letting anyone do anything else to me right until I can get some relief for this left knee. Yes all this was done by the same doctor he said if he does not get the results he is looking for he is going to refer me to another surgeon for a 2nd opinion. Yes I will keep you all informed once I get my results from the test.

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@zakcat

Sounds awful. Was it done by same doctor? Now I'm scared, I'm having my second replacement, left knee, done next week!

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@zakcat i'm not sure who you are replying to, but if you have selected the doctor well then you have no reason to be concerned. Your first TKR finally got better, although it took longer than you anticipated, correct? Since your first knee was good then I am sure your second one will be too.
Although I opted for the Conformis knee because I read that it has an easier recovery since it is made to be the same as your natural knee was, I have pretty much heard that the biggest difference in recovery is in the skill of the surgeon. I think of my recovery as being great and the knee never hurts except occasionally a little twinge when I have overdone exercise.
I hope your second TKR goes well, let us know how you are doing when you are feeling up to corresponding.
JK

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@lynnwade54

Hi everyone, to answer your questions; no I am not getting synvisc injections nor acupuncture to either knee, my surgeon nor therapist never mentioned acupuncture or injections to me. At this point I am so afraid of letting anyone do anything else to me right until I can get some relief for this left knee. Yes all this was done by the same doctor he said if he does not get the results he is looking for he is going to refer me to another surgeon for a 2nd opinion. Yes I will keep you all informed once I get my results from the test.

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@lynnwade54 I am pretty sure that synvisc could not make anything worse and it could really help to have one leg that feels better. If this has not come up with your surgeon you might want to ask him. It honestly did wonders for my knee. The only caveat being that if you do schedule a TKR on that knee at some point you can't have any injections for a certain amount time prior to it. I can't remember if it was 3 months or 6 months. For most people this would not be a problem because their orthopedic surgeon would be the same doctor who you would get shots from, but I go to one doctor for simple things like that, and I went to a different doctor for the TKR, someone who had an impeccable reputation and who used the Conformis knee.
JK

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@zakcat

Sounds awful. Was it done by same doctor? Now I'm scared, I'm having my second replacement, left knee, done next week!

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@zakcat - Don't be scared. I had my 2nd TKR in January of this year and it was a huge success. It's better than my first that was done in 2017. I'm pulling for you. Will you keep us posted? What are you most scared about?

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