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POTS - postural orthostatic tachycardia syndrome

Heart Rhythm Conditions | Last Active: Oct 12, 2022 | Replies (46)
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@julianned

Does anyone else have an Ehlers Danlos or connective tissue disorder? Apparently I have hyper-flexibility...no one has noticed this until now (including myself!!!!) I guess I always thought it was normal and in fairness to the doctors it is sort of hard to spot unless youre looking for it..

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Replies to "Does anyone else have an Ehlers Danlos or connective tissue disorder? Apparently I have hyper-flexibility...no one..."
jobby99 | @jobby99 | Jan 1, 2021

I have very good flexibility, but never bothered to get Ehlers Danlos diagnosis as I don't think it would help me very much with the POTS diagnosis being the main problem. I do have a lot of nerve entrapments, but not sure if it is related to being too flexible or not. In theory, the body might compensate for the increased flexibility by tightening muscles. However, I have no way of knowing if this is causing my spasticity issues.

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