← Return to POTS - postural orthostatic tachycardia syndrome

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Hi @julianned, I moved your message to the Heart Rhythm Conditions group where other member like @kariulrich, @neeci, @mojoearle, @bearylynn, @dogmamat, @brie87144, @jenniferjjjj, @widman, and others are talking about POTS (postural orthostatic tachycardia syndrome).

You may be interested in reading these past discussions on Connect too:
– Managing POTS (Postural Orthostatic Tachycardia Syndrome) https://connect.mayoclinic.org/discussion/managing-pots-postural-orthostatic-tachycardia-syndrome
– Diagnosed with dysautonomia. Looking for treatment options http://mayocl.in/2bKzAwa
– Awkward/rapid/skipping heartbeat http://mayocl.in/2nwaKK0
– Postural Orthostatic Tachycardia Syndrome (POTS) http://mayocl.in/2nkZe3y

I would also encourage you to read this story on Connect:
Learning to Live Well with POTS Brightens Daily Life for Christine Esposito: https://sharing.mayoclinic.org/2016/12/15/learning-to-live-well-with-pots-brightens-daily-life-for-christine-esposito/

Julian, what are the next steps for you? Will you have to discontinue propranolol and repeat the tests?

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Replies to "Hi @julianned, I moved your message to the Heart Rhythm Conditions group where other member like..."

My daughter was diagnosed with POTS at 21. I would like to reach out and ask if anyone has experience with the work of Dr. Deborah Zelinsky at the Mind Eye Institute outside of Chicago? They have used neruo-retinal imagining/glasses with success in eliminating the dysautonomia.
Thank you and all the best,