1. < Neuropathy

Ideas for pain relief from Small Fiber Neuropathy (SFN)

Posted by somisgirl @somisgirl, Sep 6, 2019

I just wanted to pass along some ideas for those of you with idiopathic small fiber neuropathy. I am a 60-year-old female in excellent health other than the onset of this about a year ago. I do not have diabetes or any other detectable health issues.
I started some new things a few weeks ago and this week I have had some remarkable relief. I am not sure if what I have done is why, or which thing might have helped, but still wanted to pass this along just to give some of you some things to try.

I wear compression socks. This seems to help with the pain and pressure I feel in my feet and ankles.
I started taking Evening of Primrose oil twice a day.
I have cut my caffeine intake by at least two-thirds and now drink mostly green or black tea. I had heard that caffeine could irritate nerves...worth a shot.
I exercise, which I have been doing for over 20 years. I think it improves circulation which I think really helps with nerve health.
I added niacin. I will aid in blood flow, also good for circulation.
I use a cream called DMSO which i put on my feet and ankles in the morning (numbs the pain)

I don't know if any of this could be helpful for you or not, But I seem greatly improved recently......I have tried everything and am always looking for new things to try in order to function with this awful condition.
I am still taking 600mg of Gabapentin 3 times a day and 20 mg Citalopram once a day and have been for 9 months. I do not take any other medications.

Blessings to all of you and I hope there is a cure some day. I intend to keep looking for solutions that do not require medications!

Interested in more discussions like this? Go to the Neuropathy Support Group.

lioness | @lioness | Feb 18, 2020
In reply to @darlingtondoll "Oh how nice to hold a baby again. My one and only granddaughter is 26 years..." + (show)
@darlingtondoll

Oh how nice to hold a baby again. My one and only granddaughter is 26 years old and she is sterile from years of anorexia. So that’s the end of the line for me. I enjoyed playing with her when she was a baby. I convinced my daughter and her husband to move clear across the country so that I could take care of her while they worked. I loved it.

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@darlingtondoll I did same for my grandson Pa to Ca

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1 reply
Jane | @darlingtondoll | Feb 18, 2020
In reply to @rwinney "Bravery = courage Courage = strength Strength = perseverance Perseverance = survivor Survivor = Us!" + (show)
@rwinney

Bravery = courage
Courage = strength
Strength = perseverance
Perseverance = survivor
Survivor = Us!

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Yes. So true!

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Jane | @darlingtondoll | Feb 18, 2020
In reply to @lioness "@darlingtondoll Boy your braver then me I haven't been out of the country good thing you..." + (show)
@lioness

@darlingtondoll Boy your braver then me I haven't been out of the country good thing you didall that hope you have pictures I got to Canada and Mexico I have fear of heights and claustrophobic although one year we did allcaves Mammoth,Sweetwater went in by boat Penn caverns Just looking at that picture gave me willies

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I love climbing to great heights. I was a mountain climber when I was younger and climbed on glaciers at considerable heights. I used to love to climb to the tops of the trees when I was a kid. I miss climbing on ladders now that I am paralyzed.

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2 replies
lioness | @lioness | Feb 18, 2020
In reply to @darlingtondoll "I love climbing to great heights. I was a mountain climber when I was younger and..." + (show)
@darlingtondoll

I love climbing to great heights. I was a mountain climber when I was younger and climbed on glaciers at considerable heights. I used to love to climb to the tops of the trees when I was a kid. I miss climbing on ladders now that I am paralyzed.

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@darlingtondoll I can't even get on a ladder I use to hike I loved that but as you say all that took a toll on us now I'm looking into a power chair 😂 I know I will need it soon to go shopping

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1 reply
Robin | @birdierobin | Feb 18, 2020
In reply to @darlingtondoll "I did travel a bit when I was first paralyzed, but the years have taken their..." + (show)
@darlingtondoll

I did travel a bit when I was first paralyzed, but the years have taken their toll. You are right about security at the airport. I was in a wheelchair and the security person demanded that I stand so that she could frisk me. I told her that I can’t stand and she yelled at me. She said that I could not fly unless I stood up to be patted down. What a hassle. Anyway, she lost the argument and I got on the plane.

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That is absolutely ridiculous I cannot believe that happened to you what a moron! The last time I flew they were doing random spot checks back then and they picked this 80 some-year-old frail lady in front of me. They asked her to raise her arm & she said ‘I can’t, I had surgery. I cannot raise it’ she raised halfway up they gave her such a hard time. I went up to her & said I know you don’t know me but at least let me hold your putsch for. She trusted me. She got through the ordeal and I got her on the plane. All this before I took sick. It just to go to show you what morons do this checking

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Mentor
Rachel, Volunteer Mentor | @rwinney | Feb 18, 2020
In reply to @darlingtondoll "I can answer that. You can’t take it with you. It is only legal with your..." + (show)
@darlingtondoll

I can answer that. You can’t take it with you. It is only legal with your card in the state where the card is issued. Ask your marijuana doctor. You can get arrested. If you visit a state where marijuana is legal to everyone, then you can buy it there, but your card is not accepted except in the state where you live. It matches my license in my state.

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Thank you. I've done my research and it matches what you've said. As I understand even if you have a MM license, Dr validation and all clearly marked bottles...if found and addressed, the Fed's must legally dispose. I've read blogs that discuss the crap shoot of people hiding, disguising and risking it. Hopefully federal laws change sooner than later for those certified.

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Robin | @birdierobin | Feb 18, 2020
In reply to @darlingtondoll "I love climbing to great heights. I was a mountain climber when I was younger and..." + (show)
@darlingtondoll

I love climbing to great heights. I was a mountain climber when I was younger and climbed on glaciers at considerable heights. I used to love to climb to the tops of the trees when I was a kid. I miss climbing on ladders now that I am paralyzed.

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Awh bdarlin I bet you do miss that, how cool you are.

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Robin | @birdierobin | Feb 18, 2020
In reply to @lioness "@darlingtondoll I can't even get on a ladder I use to hike I loved that but..." + (show)
@lioness

@darlingtondoll I can't even get on a ladder I use to hike I loved that but as you say all that took a toll on us now I'm looking into a power chair 😂 I know I will need it soon to go shopping

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Good luck lioness

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lioness | @lioness | Feb 18, 2020

@birdierobin Going ng to talk with my Dr about one

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