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DiscussionPalliative Care: What is it? How do I get it?
Cancer: Managing Symptoms | Last Active: Dec 29, 2023 | Replies (44)Comment receiving replies
Replies to "I have been with Mayo in Florida for 5 years with stage iv and have never..."
Hi @seaspray, I encourage to ask your oncologist about palliative care at Mayo Clinic. It is available at all Mayo campuses. In this archived Video Q&A Dr. Maisha Robinson shares information on palliative care at Mayo Clinic in Florida and answers questions.
- Video Q&A about Palliative Care https://connect.mayoclinic.org/webinar/discussion-on-palliative-care/
Compared to surgery, radiation and chemotherapy, it is a relatively new treatment line. Sometimes it doesn't get introduced to the patient or the patient and family may not hear that it has been offered. Like many people in this discussion, clinicians and patients alike continue to equate palliative care with hospice or end of life care. It is more than that. Like @merpreb said "Palliative care is all care, from the beginning of your illness to it's end." Palliative care focuses on LIVING with xxx (cancer, heart disease, ALS or whatever condition). It's about living with reality of disease (the road) and putting the steering wheel in your hands.
I wonder how many of you in this discussion have asked about palliative care vs. being told about it. Did you inquire about palliative care?