Video Q&A about Palliative Care

Wed, Oct 11, 2017
10:45am to 11:15am ET

Description

Dr. Maisha Robinson shares information and answers questions on palliative care. In this video, you'll learn:

  • Palliative care does not always mean hospice care.
  • Palliative care can be useful for anyone who has a serious or advanced medical condition.
  • Palliative care can be provided alongside curative medical treatments.

Dr. Robinson is an Assistant Professor in Neurology and she holds a joint appointment in the Departments of Neurology and Family Medicine at the Mayo Clinic in Jacksonville, FL, where she established a neuropalliative care program and where she serves as the Medical Director of Palliative Medicine.

Location

Online

Is it more appointments by having palliative care?

I am receiving palliative care for liver cancer. I received my first y90 treatment on Sept. 16, 2017. I am going for MRI on Oct. 13th. I also am curious to know if I am wasting what time I have left on Dr. visits. Radiation treatments, MRI’s, blood work etc. They have given me no false hope from the beginning of my first diagnosis. The Radiation Dr. said one time. It could lead to curative treatment. Am I just being strung along for the sake of making money? I want to be treated as a human being. Not as a number who has insurance. Please be straight with me. Thanks

Are you still enjoying life when not at appointments? You always have the option to quit receiving care. I’m also receiving palliative care for bile duct cancer. I’m fully aware I can quit treatment any time I want, but so far my quality of life is good enough I am choosing to continue treatment. I had a really bad stretch last winter that I never want to experience again. But now I know what I am willing to go through, and what I am not. I have very good doctors who always tell me I have a choice, so I never feel like a ‘number’ who has insurance. Good luck to you – I hope you find answers to provide you some peace as you go through this. Kris

@krishh

Are you still enjoying life when not at appointments? You always have the option to quit receiving care. I’m also receiving palliative care for bile duct cancer. I’m fully aware I can quit treatment any time I want, but so far my quality of life is good enough I am choosing to continue treatment. I had a really bad stretch last winter that I never want to experience again. But now I know what I am willing to go through, and what I am not. I have very good doctors who always tell me I have a choice, so I never feel like a ‘number’ who has insurance. Good luck to you – I hope you find answers to provide you some peace as you go through this. Kris

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Thank You Kris. I have had a few boo-hoo days lately. You are correct. I do have choices. I need to keep that in mind. Thanks for putting me in check. All the best to you also. I am looking forward to the webnair coming soon.
Thanks again, and again the best to you also.

When I was in the local hospital with an HE episode someone from palliative care came by and gave me her card. Would palliative care have been appropriate for me? Not knowing much about it I thought it was a step before hospice and did not feel I needed that. I was functioning quite well when I did not have an HE episode and those were kept at bay quite well with lactulose and xifaxan.
JK

@contentandwell

When I was in the local hospital with an HE episode someone from palliative care came by and gave me her card. Would palliative care have been appropriate for me? Not knowing much about it I thought it was a step before hospice and did not feel I needed that. I was functioning quite well when I did not have an HE episode and those were kept at bay quite well with lactulose and xifaxan.
JK

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Hi JK, @contentandwell

Palliative care is for anyone, at any stage, of a serious illness. They help coordinate care and help the patient achieve as much comfort as possible. Unlike hospice care, you don’t have to be in the latter stage of a disease. Here is an article from Mayo’s website, http://www.mayoclinic.org/departments-centers/general-internal-medicine/palliative-care-minnesota/overview.

Teresa

@contentandwell

When I was in the local hospital with an HE episode someone from palliative care came by and gave me her card. Would palliative care have been appropriate for me? Not knowing much about it I thought it was a step before hospice and did not feel I needed that. I was functioning quite well when I did not have an HE episode and those were kept at bay quite well with lactulose and xifaxan.
JK

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Hi @contentandwell I think one of the easiest ways to think about this is to remember palliative care provides for comfort, etc. and is not curative care. Not sure if this helps, but it was a help to me when trying to sort out all the jargon!

Strength, Courage, & Peace

@IndianaScott thanks Scott. Since I was comfortable except on those occasions when I had an HE episode it probably was not something that would have benefited me. I was living a very normal life, getting exercise at my health club, shopping, socializing, etc. When my hematocrit and hemoglobin dipped dangerously low and I was told to get to the hospital IMMEDIATELY I was entertaining company and wanted to wait until after dinner but they said NO. All were amazed that I was entertaining, a doctor said with my count she would have been flat on her back!
JK

Am interested in having on line initial course on palliative Care, what should I do?

@indeche

Am interested in having on line initial course on palliative Care, what should I do?

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Hi @indeche, simply click VIEW in this email that this message has sent you. The online video will go live in a couple of minutes.

It will also be recorded so that you can watch it any time.

@melclem

I am receiving palliative care for liver cancer. I received my first y90 treatment on Sept. 16, 2017. I am going for MRI on Oct. 13th. I also am curious to know if I am wasting what time I have left on Dr. visits. Radiation treatments, MRI’s, blood work etc. They have given me no false hope from the beginning of my first diagnosis. The Radiation Dr. said one time. It could lead to curative treatment. Am I just being strung along for the sake of making money? I want to be treated as a human being. Not as a number who has insurance. Please be straight with me. Thanks

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My husband was diagnosed with Liver cancer Feb 2016. He had the y90 in April that worked very well. The doctors put him on an immunotherapy that seemed to be working but in Jan 2017 another tumor had formed. Again, they did the y90 and put him on a different chemo – this did not work at all and the side effects were horrible. He was taken off the chemo in May. Currently we are not being treated and are watching our diet, taking supplements and praying earnestly. We are hopeful that my husband will qualify for a clinical trial.

@melclem

I am receiving palliative care for liver cancer. I received my first y90 treatment on Sept. 16, 2017. I am going for MRI on Oct. 13th. I also am curious to know if I am wasting what time I have left on Dr. visits. Radiation treatments, MRI’s, blood work etc. They have given me no false hope from the beginning of my first diagnosis. The Radiation Dr. said one time. It could lead to curative treatment. Am I just being strung along for the sake of making money? I want to be treated as a human being. Not as a number who has insurance. Please be straight with me. Thanks

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Hi. I feel for you very much. I too have liver cancer. I was treated with Y90. It did not work. So they let me go. Just like that. I would like to advise you to look up Chris Beat Caner. He is a young guy who beat stage 3 colon cancer with diet and supplements. That is what I am currently doing to try and survive. Clean my life up. He is cancer free for 11 years now. Just by
cleaning up lifestyle, eating all nutritious foods. etc. It’s very exciting to hear others on his blog that are living a great life now. Do yourself a favor and look it up. We can heal our own bodies. We just have to put in the research and do the work. All the best to you.

@melclem

I am receiving palliative care for liver cancer. I received my first y90 treatment on Sept. 16, 2017. I am going for MRI on Oct. 13th. I also am curious to know if I am wasting what time I have left on Dr. visits. Radiation treatments, MRI’s, blood work etc. They have given me no false hope from the beginning of my first diagnosis. The Radiation Dr. said one time. It could lead to curative treatment. Am I just being strung along for the sake of making money? I want to be treated as a human being. Not as a number who has insurance. Please be straight with me. Thanks

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All the best to you as well. We followed the Chris Beat Cancer videos also and are trying to change our lifestyle. We have changed our eating habits and are taking supplements but have not been as devoted as Chris. Staying on mainly vegetables has been very hard especially RAW vegetables. Also, I have been slowly adding the supplements because he has been having such problems with his stomach that I do not want to cause more issues. We have three children and I am determined to do whatever it takes to try and heal him.

@melclem

I am receiving palliative care for liver cancer. I received my first y90 treatment on Sept. 16, 2017. I am going for MRI on Oct. 13th. I also am curious to know if I am wasting what time I have left on Dr. visits. Radiation treatments, MRI’s, blood work etc. They have given me no false hope from the beginning of my first diagnosis. The Radiation Dr. said one time. It could lead to curative treatment. Am I just being strung along for the sake of making money? I want to be treated as a human being. Not as a number who has insurance. Please be straight with me. Thanks

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Hello Again. I am so glad you already know about Chris’s website. Believe me, I don’t think many people can follow his diet to a perfection. I have to tweek it some what. For example the raw vegs. I do blend them and drink them. But eating them I think can be hard for a compromised liver to digest. I am not a Dr. or know a whole lot about anything. I am just trying to discover what works best for me. I want all to look back 10 years from now and say, wow what a blessing to know we really can heal ourselves. Take Care, I wish you God Speed in your healing.

@melclem

I am receiving palliative care for liver cancer. I received my first y90 treatment on Sept. 16, 2017. I am going for MRI on Oct. 13th. I also am curious to know if I am wasting what time I have left on Dr. visits. Radiation treatments, MRI’s, blood work etc. They have given me no false hope from the beginning of my first diagnosis. The Radiation Dr. said one time. It could lead to curative treatment. Am I just being strung along for the sake of making money? I want to be treated as a human being. Not as a number who has insurance. Please be straight with me. Thanks

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Thank you. It is has been very uplifting chatting with you. If we encounter any hopeful remedies, I will certainly keep you posted. I wish you well and God Speed in your healing.

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