Ketamine for chronic pain

Posted by ckeys @ckeys, Sep 3, 2019

My pain doctor recently prescribed ketamine as an adjunct to my pain management. Has anyone had experience with this? It has to be compounded and you inhale it through a nose spray. Since it’s compounded there is not much info on side effects so I’m curious about other’s experiences.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

@faithwalker007

Sorry I guess you need to do what’s best for you. I’m sorry if I intrude. I just don’t want anyone to let fear stand in the way of their therapy.

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@faithwalker007 No your not I enjoy your input. I'm. retired nurse but no nothing about meds and interactions like a pharmacist does I go to ask my pharmacist about meds and interactions ,side effects

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@faithwalker007

As far as being a “wealth” of information? I don’t know about that. I’m a pharmacist of 23 years, not active but still licensed. I’ve worked 12 years for the federal government - 8 with Indian Health and 4 with the VA, the rest divided between retail, hospital, and long-term care, the majority retail.
My husband has been disabled for 15 years and has had 39 surgeries. He has post-surgical chronic pain syndrome and loose joints from prescription steroids, at least that’s what we believe. No doctor will confirm it due to legal risk. He also was born deaf and with a hard cleft palate and lip but has had reconstructive ear surgery with implants and has partial hearing in one ear.
I am now disabled with CRPS Type 2 or Causalgia. In addition, I have had 25 surgeries in my lifetime. I was born with a soft cleft palate and have had numerous related surgeries as well as emergency surgeries and orthopedic surgeries. I have severe migraines and epilepsy involving tonic-clonic seizures with onset during my pharmacy education at university. The hormonal switches by my campus doctor and stress due to having a small child and economical problems (I was told) led to the seizure activity and lowering of the seizure threshold. I have had intractable migraines and seizure activity since I was 14yo.
My joint issues arrived with an injury at the VA and subsequent repairs but during that first injury was the discovery of severe osteoarthritis at the age of 26. I was told I had the knee joints of a 65 year old woman.
I worked and maintained my pain with Celebrex and continued on through multiple surgeries and emergency situations and life with a son and soon to be disabled husband.
I became a pharmacy manager and soon after was unable to walk on a knee which refused to hold me physically or painfully.
Doctors reluctantly admitted I needed a TKR at 49 years of age and completed their sworn duty miles and miles away from my home.
Afterward, CRPS developed unbeknownst to me, much pain, and suffering, nine doctors visits, and after one and a half years of stress and hopelessness, I was finally diagnosed with the most painful disease known to man—Causalgia.
Unfortunately, I’m still traveling to see my doctor miles and miles away. I’m still fighting for pain relief. I’m still searching for answers. And I’m still combating a government that wants to take the only thing that gives me relief away.

But...

I will always— always be here to impart any information I have through experience or knowledge to help anybody who needs it.

If I ever step on toes though, please don’t hesitate to push me off of them. Do it gently though. I don’t want to fall.

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@faithwalker007 my heart bleeds for you and all you have been through. Thank you for sharing

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@faithwalker007

As far as being a “wealth” of information? I don’t know about that. I’m a pharmacist of 23 years, not active but still licensed. I’ve worked 12 years for the federal government - 8 with Indian Health and 4 with the VA, the rest divided between retail, hospital, and long-term care, the majority retail.
My husband has been disabled for 15 years and has had 39 surgeries. He has post-surgical chronic pain syndrome and loose joints from prescription steroids, at least that’s what we believe. No doctor will confirm it due to legal risk. He also was born deaf and with a hard cleft palate and lip but has had reconstructive ear surgery with implants and has partial hearing in one ear.
I am now disabled with CRPS Type 2 or Causalgia. In addition, I have had 25 surgeries in my lifetime. I was born with a soft cleft palate and have had numerous related surgeries as well as emergency surgeries and orthopedic surgeries. I have severe migraines and epilepsy involving tonic-clonic seizures with onset during my pharmacy education at university. The hormonal switches by my campus doctor and stress due to having a small child and economical problems (I was told) led to the seizure activity and lowering of the seizure threshold. I have had intractable migraines and seizure activity since I was 14yo.
My joint issues arrived with an injury at the VA and subsequent repairs but during that first injury was the discovery of severe osteoarthritis at the age of 26. I was told I had the knee joints of a 65 year old woman.
I worked and maintained my pain with Celebrex and continued on through multiple surgeries and emergency situations and life with a son and soon to be disabled husband.
I became a pharmacy manager and soon after was unable to walk on a knee which refused to hold me physically or painfully.
Doctors reluctantly admitted I needed a TKR at 49 years of age and completed their sworn duty miles and miles away from my home.
Afterward, CRPS developed unbeknownst to me, much pain, and suffering, nine doctors visits, and after one and a half years of stress and hopelessness, I was finally diagnosed with the most painful disease known to man—Causalgia.
Unfortunately, I’m still traveling to see my doctor miles and miles away. I’m still fighting for pain relief. I’m still searching for answers. And I’m still combating a government that wants to take the only thing that gives me relief away.

But...

I will always— always be here to impart any information I have through experience or knowledge to help anybody who needs it.

If I ever step on toes though, please don’t hesitate to push me off of them. Do it gently though. I don’t want to fall.

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@faithwalker007
Renee, it stinks that you have had SUCH a rough go of it in your life. Yes you are 100% being screwed over royally by a really dumb and insensitive bureaucracy. Why should they have ANY say in what you do or do not take for yourself for your pain which has NOTHING to do with them and is none of their business. The answer is, they shouldn't.

Oh, it makes me so angry that anyone can be subjected to such an unfair situation. But you are given what you are given in this life and you are forging ahead and making whatever you can out of a bad situation. I find your story (and your husband's) one of incredible bravery. You are leading a life of heroism Renee, whether you want to or not. My very best, along with my heart, go out to you.
Hank

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@mandrake70

@wheelerma @bustrbrwn22 I talked for six months or so with my psychiatrist about ketamine since nothing had worked for years. I finally went on my own and it worked wonders. He was pissed I went without consulting him. So, I am not currently seeing a psychiatrist. Doctors are people and fallible too. The problem I have had is that many don't listen to questions about new treatments that don't come from big pharma. I have a really good GP that looks at new options for things all the time. Very open minded. If you can find a doctor that will look into other options, ketamine or otherwise, you know you have one that is trying. If they won't look, then I don't know what you can do but find a new doctor.

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Thank you!

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Hmmm I like your information on Ketamine better than I like what the government published in the brochure my pain specialist gave me. Peggy

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Anyone that has read my history knows I have had chronic upper stomach pain and nausea for years. This year, around February it got worse, especially the Nausea. Then out of nowhere, I developed Peripheral Neuropathy in my feet. I have been doing Sanexas treatments on my feet for months with very little relief. I have seen every specialist and had every test possible. I even spent 4 days at the Mayo Clinic in Florida recently. They could not find a reason for my stomach pain. It was suggested I contact a local Pain management Dr in at home in Texas. I spoke with a good one in Dallas, but he said looking over my records and it looked like I have tried everything. His only suggestions was to look into CBD oil (which I had already tried and it did nothing). He also suggested Ketamine Infusion Therapy. After researching it, it seems like a treatment made for people like me. Since my Mayo Clinic Dr diagnosed me with Visceral Hypersensitivity which is pain that has no medical reason. I'd like to know if anyone has tried the Ketamine Infusion Therapy for Chronic pain? Thanks you in advance!

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@trip17, While I have no experience with Ketamine infusions I'm tagging @ckeys, @mandrake70, @teetee7, and @bluegirl0 who may be able to share their experience with Ketamine infusions with you.

You may also be interested in the following article on Visceral Hypersensitivity.

- Visceral Hypersensitivity and IBS: https://www.verywellhealth.com/visceral-hypersensitivity-1945074

Have you had a chance to discuss Ketamine infusions with your doctor?

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@trip17 You are curious about, "ketamine for chronic pain." You will see that I have moved your question into a discussion where members are currently discussing ketamine for chronic pain. I did this so you could more quickly connect and get support.

John has tagged members that have previously discussed this topic and may be a resource to you.

I encourage you to scroll back through the comments to find previously shared suggestions.

Like John, I am curious what your provider has said about ketamine?

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@trip17 I don't have experience with ketamine for chronic pain but I have had the IV infusions for the past year for major depression. It has worked really well for me. I have heard of good results for treating chronic pain too so it may be worth trying since it sounds like not much else has helped.

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@mandrake70

@trip17 I don't have experience with ketamine for chronic pain but I have had the IV infusions for the past year for major depression. It has worked really well for me. I have heard of good results for treating chronic pain too so it may be worth trying since it sounds like not much else has helped.

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Thank you. I've done an awful lot of research and hear the same thing. thanks for your feedback!

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