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Ketamine for chronic pain

Chronic Pain | Last Active: Nov 19, 2023 | Replies (120)

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@faithwalker007

As far as being a “wealth” of information? I don’t know about that. I’m a pharmacist of 23 years, not active but still licensed. I’ve worked 12 years for the federal government - 8 with Indian Health and 4 with the VA, the rest divided between retail, hospital, and long-term care, the majority retail.
My husband has been disabled for 15 years and has had 39 surgeries. He has post-surgical chronic pain syndrome and loose joints from prescription steroids, at least that’s what we believe. No doctor will confirm it due to legal risk. He also was born deaf and with a hard cleft palate and lip but has had reconstructive ear surgery with implants and has partial hearing in one ear.
I am now disabled with CRPS Type 2 or Causalgia. In addition, I have had 25 surgeries in my lifetime. I was born with a soft cleft palate and have had numerous related surgeries as well as emergency surgeries and orthopedic surgeries. I have severe migraines and epilepsy involving tonic-clonic seizures with onset during my pharmacy education at university. The hormonal switches by my campus doctor and stress due to having a small child and economical problems (I was told) led to the seizure activity and lowering of the seizure threshold. I have had intractable migraines and seizure activity since I was 14yo.
My joint issues arrived with an injury at the VA and subsequent repairs but during that first injury was the discovery of severe osteoarthritis at the age of 26. I was told I had the knee joints of a 65 year old woman.
I worked and maintained my pain with Celebrex and continued on through multiple surgeries and emergency situations and life with a son and soon to be disabled husband.
I became a pharmacy manager and soon after was unable to walk on a knee which refused to hold me physically or painfully.
Doctors reluctantly admitted I needed a TKR at 49 years of age and completed their sworn duty miles and miles away from my home.
Afterward, CRPS developed unbeknownst to me, much pain, and suffering, nine doctors visits, and after one and a half years of stress and hopelessness, I was finally diagnosed with the most painful disease known to man—Causalgia.
Unfortunately, I’m still traveling to see my doctor miles and miles away. I’m still fighting for pain relief. I’m still searching for answers. And I’m still combating a government that wants to take the only thing that gives me relief away.

But...

I will always— always be here to impart any information I have through experience or knowledge to help anybody who needs it.

If I ever step on toes though, please don’t hesitate to push me off of them. Do it gently though. I don’t want to fall.

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Replies to "As far as being a “wealth” of information? I don’t know about that. I’m a pharmacist..."

@faithwalker007 my heart bleeds for you and all you have been through. Thank you for sharing

@faithwalker007
Renee, it stinks that you have had SUCH a rough go of it in your life. Yes you are 100% being screwed over royally by a really dumb and insensitive bureaucracy. Why should they have ANY say in what you do or do not take for yourself for your pain which has NOTHING to do with them and is none of their business. The answer is, they shouldn't.

Oh, it makes me so angry that anyone can be subjected to such an unfair situation. But you are given what you are given in this life and you are forging ahead and making whatever you can out of a bad situation. I find your story (and your husband's) one of incredible bravery. You are leading a life of heroism Renee, whether you want to or not. My very best, along with my heart, go out to you.
Hank