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elizabeth1941 (@elizabeth1941)

Dofetilide (Tikosyn): adjusting dosage

Heart Rhythm Conditions | Last Active: Jul 29, 2020 | Replies (42)

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@sayaboleh

I guess it comes down to tradeoffs. I was terrified of taking amiodarone for years until I started having episodes that were really intolerable. At that point, you just want it to stop and since amiodarone was the only thing that worked so I just learned to live with my fears. I think with everything there are exceptions, such as the 92 year old who took it for 20 years. Generally though the heart's electrical system somehow finds a way to break through and it's only a matter of time when the drugs stop working — meaning you will have episodes. Whether you will have fewer is another question and an interesting one. For some reason I never really considered that possibility. Most of us would rather not have any, or just short ones that convert on their own. It also depends on how you feel during an episode. Going on amiodarone is a big decision and even though I had no adverse side effects I do not plan on starting it again anytime soon. I would rather opt for a 3rd ablation if it came to that.

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Replies to "I guess it comes down to tradeoffs. I was terrified of taking amiodarone for years until..."

What you say makes a lot of sense. We talk about "afib" and we all experience it in different ways. My first attack was in March 15 and 7 hours and a diltiazem drip cured it. 2nd was 3 years later, 3rd a year later, 2019. Then 3 together once a week when I was adding Claritin for allergies. Those 3 all stopped by themselves at home after a night's sleep. (Nothing since then and I definitely will not take any more Claritin, even though it was cleared by pharmacist.) So I assume that Dofetilide (Tikosyn) is still helping. It sounds like I have a relatively mild form of afib. Good luck to you!

I had arythms day almost every night until I discovered triggers. Learning to stop using triggers has made arythms less than one percent of the time