1. < Digestive Health

C. diff relapse?

Posted by patts @patts, Sep 1, 2019

How many have had a relapse. I finished my two weeks of vancomycin and believe I still have it. Did a stool sample Friday, so I guess I’ll see. Tired of isolation, Clorox and mood.

Interested in more discussions like this? Go to the Digestive Health Support Group.

patts | @patts | Sep 26, 2019
In reply to @patts "Okay, all my c diff people, lol. Doc says I’m cleared to go out now, etc.,..." + (show)
@patts

Okay, all my c diff people, lol. Doc says I’m cleared to go out now, etc., since my bowels have pretty much righted themselves. I finish off my Vancomycin prescription midday tomorrow.

I’m going to bleach mop the bathroom and fixtures and continue with the Clorox wipes at least another week. I’ve an appointment to see her in three weeks. But IF I start having sympathy again, to call her immediately.

She will then prescribe a 6-week taper program and/or go with a FMT. Funny, being a gastro doc, she’s freaked out by the thought of FMT. I told her if it works, I’m all for it.

I told her my concern with multiple relapses and how I’m afraid I’ll telapse right before our dream British Isles cruise next August. She said she’d give me a prophylactic Vancomycin prescription to keep me “clear.”

Jump to this post

And I have relapsed. 🙁. Will be starting a taper for 6 weeks tomorrow (CVS had to order it). So, I’ll miss 2 trips in those 6 weeks. Staying home for 6 more weeks isn’t gong to be fun.

REPLY
tlk | @tlk | Oct 20, 2019
In reply to @danab "Ho @patts, i sure feel your pain. Are you sure its a relaps? It took me..." + (show)
@danab

Ho @patts, i sure feel your pain. Are you sure its a relaps? It took me a month to finally get over the symptoms. I had finished the meds but still needed frequent bathroom visits. Them finally after a month my bowels started acting a bit more normal.

Jump to this post

Can you tell me more about your experience? I have had Cdiff that went undiagnosed for 7 months. I am on my last day of 10 day dificid and but still have between 1-3 watery diarrhea episodes most days. But I can tell it’s definitely working, all my other symptoms are less also. Did you do retesting and did you still have diarrhea after your antibiotic treatment for the c diff? I’m worried I’m still contagious

REPLY
patts | @patts | Oct 20, 2019

I would think if you’re still having diarrhea you may still have it, but I’m not a doctor. After my first dose of Vancomycin and still having issues, I was tested and it came out positive. The second time turned out to not be c diff. I asked my doctor about how I could tell and she reminded e that c diff has a certain odor.

Voice your concerns with your doctor

REPLY
1 reply
basslakebabe19 | @basslakebabe19 | Oct 21, 2019

While I have never experienced a relapse, I did contract it three separate times. Then that was the last of it.

REPLY
penn1023 | @penn1023 | Oct 22, 2019
In reply to @patts "I would think if you’re still having diarrhea you may still have it, but I’m not..." + (show)
@patts

I would think if you’re still having diarrhea you may still have it, but I’m not a doctor. After my first dose of Vancomycin and still having issues, I was tested and it came out positive. The second time turned out to not be c diff. I asked my doctor about how I could tell and she reminded e that c diff has a certain odor.

Voice your concerns with your doctor

Jump to this post

Will you do FMT?

REPLY
View MoreView Less
Please sign in or register to post a reply.